ArticleNeuropsychiatric disease and treatment2019
Experiences Of Immigrant Parents In Sweden Participating In A Community Assessment And Intervention Program For Preschool Children With Autism.
Article in Neuropsychiatric disease and treatment, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 2 of them syntheses that pooled it.
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Who cites it
12 citing papers in PubMed, 2 syntheses or guidelines pooled it, 23 citations in OpenAlex.
- Phenomenological research in the field of Infant Mental Health and Early Childhood (IECMH) -A mapping review.Infant mental health journal · 2026Pooled it
- Identifying autistic children: Priorities for research arising from a systematic review of parents' experiences of the assessment process.Autism : the international journal of research and practice · 2024Pooled it
- Bridging gaps in healthcare: child health services and specialist care collaboration for young children with autism and coexisting conditions.Frontiers in pediatrics · 2025Article
- Navigating racism, stigma, and autism services: A scoping review of the lived experiences of racially and ethnically minoritized families.PLOS mental health · 2025Article
- The assessment of preschool children with ESSENCE symptoms: concordance between parents, preschool teachers and child psychologists.BMC pediatrics · 2024Article
- Family-centred care interventions for children with chronic conditions: A scoping review.Health expectations : an international journal of public participation in health care and health policy · 2024Article
- Intervention in autism based on Early Start Denver Model in a multiethnic immigrant setting-experiences of preschool staff involved in its implementation.Frontiers in child and adolescent psychiatry · 2024Article
- "The package has been opened"- parents' perspective and social validity of an Early Start Denver Model intervention for young children with autism.Frontiers in child and adolescent psychiatry · 2024Article
- A feasibility study of a new instrument for detection of autism signs in preschool settings. Psychometric properties of the joint attention observation schedule preschool (JA-OBS preschool).Frontiers in child and adolescent psychiatry · 2022Article
- A High Prevalence of Autism Spectrum Disorder in Preschool Children in an Immigrant, Multiethnic Population in Sweden: Challenges for Health Care.Journal of autism and developmental disorders · 2021Article
- Feeding Problems Including Avoidant Restrictive Food Intake Disorder in Young Children With Autism Spectrum Disorder in a Multiethnic Population.Frontiers in pediatrics · 2021Article
- Autism Spectrum and Other Neurodevelopmental Disorders in Children of Immigrants: A Brief Review of Current Evidence and Implications for Clinical Practice.Frontiers in psychiatry · 2021Review
Corrections and comments
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Authors and funding
5 authors at 2 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundBarriers inherent in service systems for autism can hinder parents from getting help for their children, and this is probably especially true for immigrant parents. In order to provide accessible assessment and interventions for preschool children with autism, a multidisciplinary team was established in one district of a Swedish city, with a majority population of immigrants.
aimThe aim of the present study was to gain knowledge of the parents' experiences of participating in the community assessment and intervention program. METHODS AND PROCEDURES: A qualitative study with semi-structured interviews was conducted with parents of 11 children aged 3-5, who had been diagnosed with autism and participated in the community intervention program for at least 1 year. The interviews were recorded and transcribed verbatim, and data were analyzed following a phenomenological hermeneutical method.
resultsThe overall meaning of the parents' narratives was interpreted as "A new way of understanding my child made life more hopeful and more challenging than before". Their experience was interpreted as a process, captured in the three main themes: "An overwhelming diagnosis", "Cooperating with the team", and "Growing as a parent".
conclusionAs lacking knowledge of available resources and support seems to be an important barrier to access services, the results underscore the importance of providing individually tailored services including comprehensive societal support to immigrant families with young children suffering from autism. The study also highlights the importance of addressing the parents' previous awareness and knowledge of autism early in the assessment process, as well as continually involving parents in the intervention program, and this may enhance parental growth.
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