ArticleRisk management and healthcare policy2019
Jordanians' Perspectives On Open Consent In Biomedical Research.
Article in Risk management and healthcare policy, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
9 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Exploring perspectives of interest-holders on the use of health and genomic data from deceased participants in research: An updated systematic review.Journal of genetic counseling · 2026Pooled it
- Attitudes Toward Providing Open Access for Use of Biospecimens and Health Records: A Cross-Sectional Study from Jordan.Patient preference and adherence · 2023Article
- Perceptions, attitudes, and willingness of the public in low- and middle-income countries of the Arab region to participate in biobank research.BMC medical ethics · 2022Article
- Motivators and barriers towards clinical research participation: A population-based survey from an Arab MENA country.PloS one · 2022Article
- Sharing, reuse, and storage of biosamples among biomedical researchers in Jordan: Practice and concerns.PloS one · 2022Article
- Exploring Knowledge and Perceptions of Faculty Members about Authorship: A Study from Jordan.European online journal of natural and social sciences · 2022Article
- Awareness of pharmacy researchers about the national research code of ethics: A study from Jordan.Heliyon · 2021Article
- Article
- Perceptions Towards Medical Research Participation: A Study from Jordan.Journal of multidisciplinary healthcare · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionThe informed consent process is an integral step in biomedical research. However, the emergence of biobanks and the need for open consent (also called "broad" or "blanket" consent) create challenges to this process. AIMS AND METHODOLOGY: A survey was used to examine Jordanians' perspectives on open consent and reuse of stored samples in future research.
resultsThe majority of participants had positive perceptions of informed consent and its importance. In addition, they appreciated the challenges that are associated with multiple uses of their biospecimens. About 55% agreed to provide open consent for reuse of their donated biospecimens. Participants (75-80%) also agreed that issues such as the possibility of sharing samples with international research centers, storage duration, and use of biospecimens after their death should be clarified as part of open consent. The inconvenience of the re-contact process, trust in the research team, and the importance of biobanks were all associated with participants' willingness to provide open consent (P<0.05). On the other hand, privacy and confidentiality, doubt about future use of samples, unknown storage period, and the possibility of cross-border sample sharing were significantly associated with participants' reluctance to provide open consent.
conclusionThe majority of Jordanians accept the idea of open consent. Clarification of issues such as international sample sharing, duration of storage, domains of intended research, confidentiality, and privacy can provide more support for the use of open consent.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.