Evidence map›Paper›PMID 31817849›Full record

ArticleInternational journal of environmental research and public health2019

Designing and Evaluating a Digital Family Health History Tool for Spanish Speakers.

Maria Cerda Diez, Dharma E Cortés, Michelle Trevino-Talbot, Candice Bangham, Michael R Winter, Howard Cabral, Tricia Norkunas Cunningham, Diana M Toledo, Deborah J Bowen, Michael K Paasche-Orlow and 2 more

Abstract read
In one paragraph

Article in International journal of environmental research and public health, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.

0numbers the graph read from it
0cells of the map it votes in
11citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

11 citing papers in PubMed.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Maria Cerda DiezDepartment of Community Health Sciences, Boston University School of Public Health, Boston, MA 02118, USA.
Dharma E CortésHealth Equity Research Lab, Cambridge Health Alliance, Cambridge, MA 02141, USA.
Michelle Trevino-TalbotDepartment of Community Health Sciences, Boston University School of Public Health, Boston, MA 02118, USA.
Candice BanghamDepartment of Community Health Sciences, Boston University School of Public Health, Boston, MA 02118, USA.
Michael R WinterBiostatistics and Epidemiology Data Analytics Center (BEDAC), Boston University School of Public Health, Boston, MA 02118, USA.
Howard CabralDepartment of Biostatistics, Boston University School of Public Health, Boston, MA 02118, USA.
Tricia Norkunas CunninghamDepartment of Community Health Sciences, Boston University School of Public Health, Boston, MA 02118, USA.
Diana M ToledoDepartment of Pathology and Laboratory Medicine, Dartmouth-Hitchcock Medical Center, Lebanon, NH 03756, USA.ORCID 0000-0002-7501-8286
Deborah J BowenDepartment of Bioethics and Humanities, School of Public Health, University of Washington, Seattle, WA 98195, USA.
Michael K Paasche-OrlowDepartment of Medicine, Boston University School of Medicine, Boston, MA 02218, USA.
Timothy BickmoreCollege of Computer and Information Science, Northeastern University, Boston, MA 02115, USA.
Catharine WangDepartment of Community Health Sciences, Boston University School of Public Health, Boston, MA 02118, USA.ORCID 0000-0001-8584-2781

Funding

Using virtual counselors to overcome genetic literacy barriers: Project VICKYR01HG007746 · NHGRI · BOSTON UNIVERSITY MEDICAL CAMPUS · PI WANG, CATHARINE · 2014 to 2018
$2.5M
NHGRI NIH HHS R01 HG007746NIH HHS 3R01HG007746-03S1
6 · The paper itself

Abstract

Digital family health history tools have been developed but few have been tested with non-English speakers and evaluated for acceptability and usability. This study describes the cultural and linguistic adaptation and evaluation of a family health history tool (VICKY: VIrtual Counselor for Knowing Your Family History) for Spanish speakers. In-depth interviews were conducted with 56 Spanish-speaking participants; a subset of 30 also participated in a qualitative component to evaluate the acceptability and usability of Spanish VICKY. Overall, agreement in family history assessment was moderate between VICKY and a genetic counselor (weighted kappa range: 0.4695 for stroke-0.6615 for heart disease), although this varied across disease subtypes. Participants felt comfortable using VICKY and noted that VICKY was very likeable and possessed human-like characteristics. They reported that VICKY was very easy to navigate, felt that the instructions were very clear, and thought that the time it took to use the tool was just right. Spanish VICKY may be useful as a tool to collect family health history and was viewed as acceptable and usable. The study results shed light on some cultural differences that may influence interactions with family history tools and inform future research aimed at designing and testing culturally and linguistically diverse digital systems.

Indexed as

Hispanic or LatinoLanguageAdultAgedCultural CompetencyDiagnostic Tests, RoutineElectronic Health RecordsFemaleHumansMaleMedical History TakingMiddle AgedQualitative ResearchYoung Adultconversational agente-healthethnic/racial minoritiesevaluation of genomic tools for public healthfamily health historygenetic communicationhealth disparitieshealth literacypublic health geneticsSpanish language

Identifiers

PMID31817849
PMCPMC6950582

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.