ArticleFamily practice2020
Preventing unwanted situations and gaining trust: a qualitative study of older people and families' experiences with advance care planning in the daily practice of primary care.
Article in Family practice, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 5 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
16 citing papers in PubMed, 5 syntheses or guidelines pooled it, 23 citations in OpenAlex.
- Patient perceptions of advance care planning within primary care: a systematic review of facilitators and barriers.BMC primary care · 2025Pooled it
- Older Patients' Verbal Communication in Interactions With Primary Care Staff: A Qualitative Systematic Review and Meta-Ethnography.Health expectations : an international journal of public participation in health care and health policy · 2025Pooled it
- Attributes of family physician encounters valued by older adults: a systematic review.BMC primary care · 2025Pooled it
- Advance care planning for frail elderly: are we missing a golden opportunity? A mixed-method systematic review and meta-analysis.BMJ open · 2023Pooled it
- Opinions of Older Individuals on Advance Care Planning and Factors Affecting Their Views: A Systematic Review.International journal of environmental research and public health · 2023Pooled it
- The ACP-ASC model: A comprehensive behaviour change model for advance care planning based on the Stages of Change model.Palliative medicine · 2026Article
- To Plan or Not to Plan? Experiences and Challenges of Older Swiss Adults Facing End-of-Life Decisions.Omega · 2026Article
- Factors influencing home health nurses' willingness to implement advance care planning based on Terror management theory: a cross-sectional study.BMC nursing · 2026Article
- Attitudes to earlier advance care planning: a qualitative interview study in general practice.The British journal of general practice : the journal of the Royal College of General Practitioners · 2026Article
- Casemanagers Positioned as Key Advance Care Planning Conversationalists in Oncology Care: A Qualitative Interview Study on the Perspectives of Healthcare Professionals and Patients.Cancer medicine · 2025Article
- Four timing patterns of initiation of advance care planning discussions as practiced by home visiting nurses: A qualitative study.Journal of general and family medicine · 2025Article
- Analysis of middle-aged and older adults' willingness concerning living wills and associated factors.Frontiers in public health · 2025Article
- Attitudes towards advance care planning amongst community-based older people in England.PloS one · 2024Article
- Testing thePEC innovation · 2023Article
- The patient's relationship with the General Practitioner before and after Advance Care Planning: pre/post-implementation study.BMC geriatrics · 2022Article
- Information meetings on end-of-life care for older people by the general practitioner to stimulate advance care planning: a pre-post evaluation study.BMC family practice · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundUsing advance care planning (ACP) to anticipate future decisions can increase compliance with people's end-of-life wishes, decrease inappropriate life-sustaining treatment and reduce stress, anxiety and depression. Despite this, only a minority of older people engage in ACP, partly because care professionals lack knowledge of approaches towards ACP with older people and their families.
objectiveTo explore older people's and their families' experiences with ACP in primary care.
methodsWe conducted qualitative, semi-structured, face-to-face interviews with 22 older people (aged >70 years, v/m: 11/11), with experience in ACP, and eight of their family members (aged 40-79 years, f/m: 7/1). Transcripts were inductively analysed using a grounded theory approach.
resultsWe distinguished three main themes. (i) Openness and trust: Respondents were more open to ACP if they wanted to prevent specific future situations and less open if they lacked trust or had negative thoughts regarding general practitioners' (GPs') time for and interest in ACP. Engaging in ACP appeared to increase trust. (ii) Timing and topics: ACP was not initiated too early. Quality of ACP seemed to improve if respondents' views on their current life and future, a few specific future care scenarios and expectations and responsibilities regarding ACP were discussed. (iii) Roles of family: Quality of ACP appeared to improve if family was involved in ACP.
conclusionsQuality and accessibility of ACP may improve if GPs and nurses involve family, explain GPs' interest in ACP and discuss future situations older people may want to prevent, and views on their current life and future.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.