ArticleJournal of pediatric hematology/oncology2020
Family Resilience From the Perspective of Caregivers of Youth With Sickle Cell Disease.
Article in Journal of pediatric hematology/oncology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
13 citing papers in PubMed, 34 citations in OpenAlex.
- Resilience in families of children with dextro-transposition of the great arteries.Journal of perinatology : official journal of the California Perinatal Association · 2026Article
- Humanistic and economic burden among caregivers of adults and children with sickle cell disease and recurrent vaso-occlusive crises.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Family Resilience in the ICU: A Concept Analysis.Nursing in critical care · 2025Review
- Resiliency in Child-Caregiver Dyads and the Impact on Health Outcomes in Sickle Cell Disease.Children (Basel, Switzerland) · 2025Article
- Assessing psychosocial risk factors in children with Sickle Cell Disease.BMC health services research · 2025Article
- Lived experiences of Malaysian family caregivers of patients with chronic illnesses: A qualitative study.Malaysian family physician : the official journal of the Academy of Family Physicians of Malaysia · 2025Article
- Impact of Neighborhood Disadvantage on Preventive and Acute Care Utilization in Sickle Cell Disease.Pediatric blood & cancer · 2025Article
- The relationship between family communication and family resilience in Chinese parents of depressed adolescents: a serial multiple mediation of social support and psychological resilience.BMC psychology · 2024Article
- The Burden of Sickle Cell Disease on Children and Their Caregivers: Caregiver Reports of Children's Health-Related Quality of Life and School Experiences, Caregiver Burden, and Their Association with Frequency of Vaso-Occlusive Crises.Patient related outcome measures · 2023Article
- The dyadic care experiences of elderly individuals with disabilities and caregivers in the home setting from the perspective of family resilience: A qualitative study.Frontiers in psychiatry · 2022Article
- "I've Weathered Really Horrible Storms Long Before This…": The Experiences of Parents Caring for Children with Hematological and Oncological Conditions during the Early Months of the COVID-19 Pandemic in the U.S.Journal of clinical psychology in medical settings · 2021Article
- Addressing unmet basic needs for children with sickle cell disease in the United States: clinic and staff perspectives.BMC health services research · 2021Article
- Music as Supportive Care for Young Children with Sickle Cell Disease and their Parents: A Three-phase Qualitative Exploration into the Cultural Relevance of Active Music Engagement with Black Families.Global advances in integrative medicine and healthArticle
Corrections and comments
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Authors and funding
9 authors at 5 institutions in 1 country.
Funding
Abstract
Families coping with sickle cell disease (SCD) often face heightened psychosocial risk factors, and research in pediatric SCD has often focused more on this area than resiliency factors. The aim of this study was to gain a better understanding of family resiliency in SCD based on caregiver perspectives. A secondary qualitative analysis was conducted with data from a mixed-methods study of caregivers of youth with SCD (n=22). Qualitative analyses involved coding based on 2 resiliency frameworks, organizing coding categories into themes, and systematically reintegrating these themes into a conceptualization that reflected family resiliency. Themes aligned well with the resiliency frameworks and related to family belief systems and meaning-making around SCD (acceptance of SCD, positive attitude, religious faith), family organization and adaptation (flexibility, stability, social supports), and the importance of communication and problem-solving. Study findings emphasize the importance of assessing resilience in families of youth with SCD and suggest the potential clinical benefits of developing psychosocial interventions based on family strengths.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.