Evidence map›Paper›PMID 31811484›Full record

ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2020

Initial validation of a needs instrument for young people bereaved by familial cancer.

Pandora Patterson, Fiona E J McDonald, Daniel S J Costa, Richard Tindle, Kimberley R Allison, Sue E Morris

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Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Pandora PattersonResearch, Evaluation and Social Policy, CanTeen Australia, M: GPO Box 3821, Sydney, NSW, 2001, Australia. pandora.patterson@canteen.org.au.ORCID http://orcid.org/0000-0002-1686-3252
Fiona E J McDonaldResearch, Evaluation and Social Policy, CanTeen Australia, M: GPO Box 3821, Sydney, NSW, 2001, Australia.ORCID http://orcid.org/0000-0003-4484-4929
Daniel S J CostaPain Management Research Institute, Royal North Shore Hospital, Sydney, NSW, Australia.ORCID http://orcid.org/0000-0002-6111-0620
Richard TindleResearch, Evaluation and Social Policy, CanTeen Australia, M: GPO Box 3821, Sydney, NSW, 2001, Australia.ORCID http://orcid.org/0000-0001-9661-811X
Kimberley R AllisonResearch, Evaluation and Social Policy, CanTeen Australia, M: GPO Box 3821, Sydney, NSW, 2001, Australia.ORCID http://orcid.org/0000-0002-4446-5868
Sue E MorrisDepartment of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, 450 Brookline Ave, Boston, MA, 02215, USA.ORCID http://orcid.org/0000-0002-3022-5951

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveThis study aimed to validate the Bereaved Cancer Needs Instrument (BCNI), an instrument designed to assess the unmet psychosocial needs of adolescents and young adults (AYAs, 12-25 years) who have experienced the death of a parent or sibling to cancer.

methodsIn total, 335 participants aged 12 to 25 (M = 15.80, SD = 3.32) who had experienced the death of a parent (N = 297) or sibling (N = 38) from cancer took part in this study. Participants completed the BCNI, the Kessler-10 psychological distress scale (K10), and several items assessing the acceptability of the BCNI.

resultsExploratory factor analysis indicated that a seven-factor structure best fit the BCNI, accounting for 56.65% of the variance in unmet psychosocial needs of cancer-bereaved AYAs. The measure had good psychometric properties, high levels of internal consistency for all domains, and correlated strongly with the K10 (r = .59, p < .001). Item response theory analysis demonstrated that the response scale was appropriate, with strong discrimination indices. Analyses also indicated the potential to reduce the BCNI from 58 items to a 37-item short-form, although this will require further validation.

conclusionsThe BCNI is the first psychometrically validated instrument to identify the unmet psychosocial needs of bereaved AYAs who have experienced the death of a parent or sibling to cancer. The instrument can be used in research and health care settings to identify the unmet needs of young people bereaved by cancer and provide targeted support to reduce psychological distress.

Indexed as

BereavementHealth Services Needs and DemandAdolescentAdultChildFactor Analysis, StatisticalFemaleGriefHumansMaleNeoplasmsParentsPsychometricsSiblingsSocial SupportSurveys and QuestionnairesAdolescent and young adultBereavementDistressFamilial cancerUnmet needsValidation

Identifiers

PMID31811484

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.