ReviewHematology. American Society of Hematology. Education Program2019
Sickle cell disease: a comprehensive program of care from birth.
Review in Hematology. American Society of Hematology. Education Program, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers.
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Who cites it
15 citing papers in PubMed, 34 citations in OpenAlex.
- Creative and Adaptive Solutions for Early Diagnosis of Sickle Cell Disease in Sub-Saharan Africa.American journal of hematology · 2026Review
- Integration of newborn screening for sickle cell disease into primary health care in Bukavu, Democratic Republic of the Congo: a pilot study.BMC primary care · 2025Article
- Cascade testing effectively identifies undiagnosed sickle cell disease in The Gambia: a quality improvement project.Archives of disease in childhood · 2025Article
- Hydroxyurea for Malignant Pertussis in Critically Ill Children.Critical care explorations · 2025Article
- Sickle cell disease awareness and perception among Christian religious leaders in Accra Metropolis: a qualitative study.Journal of community genetics · 2024Article
- Social Vulnerability and Sickle Cell Disease Mortality in the US.JAMA network open · 2024Article
- Article
- Sickle Cell Disease Newborn Screening-An Audit of a Twin Island State Pilot Program.International journal of neonatal screening · 2023Article
- Sickle Cell Disease in Early Infancy: A Case Report.Pediatric health, medicine and therapeutics · 2022Article
- Sickle Cell Disease in Children and Adolescents: A Review of the Historical, Clinical, and Public Health Perspective of Sub-Saharan Africa and Beyond.International journal of pediatrics · 2022Review
- Clinical-Epidemiological Characteristics and Mortality in Patients with Sickle Cell Anemia: A Retrospective Cohort Study of 1980 at 2018.International journal of general medicine · 2022Article
- Chronic organ injuries in children with sickle cell disease.Haematologica · 2021Article
- Improvement of SCD morbimortality in children: experience in a remote area of an African country.BMC health services research · 2021Article
- Implementing newborn screening for sickle cell disease as part of immunisation programmes in Nigeria: a feasibility study.The Lancet. Haematology · 2020Article
- Impact of COVID-19 pandemic on access to online therapeutic education programs for children with sickle cell disease.Journal of pediatric nursingArticle
Corrections and comments
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Authors and funding
3 authors at 3 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
As more children are appropriately being diagnosed, the burden of sickle cell disease is increasing greatly in Africa and in high-resource countries such as the United States and Europe. Early management is mandatory, but newborn screening is not implemented everywhere. Point-of-care testing devices are increasingly being used in low-resource countries, showing good sensitivity and specificity. Because the diagnosis is often traumatic for the families, the announcement should be made by an experienced person. The development of care networks is urgently required to facilitate daily life by defining the respective functions of nearby and highly specialized health care professionals, who should work in close collaboration. Comprehensive programs targeting the prevention of pneumococcal infections, malaria in infested zones, and stroke may substantially improve patient care. Hydroxyurea is increasingly being used, but whether it should be systematically prescribed in all children is debated, and its access is still limited in many African countries. Yearly checkups should be organized early in life in order to screen and then treat any organ impairment. Enhancing parents' and patients' knowledge and skills is mandatory.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.