ArticleJournal of intellectual disability research : JIDR2020
Role of family caregivers regarding sexual and reproductive health for women and girls with intellectual disability: A scoping review.
Article in Journal of intellectual disability research : JIDR, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed, 1 synthesis or guideline pooled it, 30 citations in OpenAlex.
- How effects on health equity are assessed in systematic reviews of interventions.The Cochrane database of systematic reviews · 2022Pooled it
- Disability-inclusive reproductive healthcare: A reproductive health education intervention for caregivers of girls with cerebral palsy in India.Public health in practice (Oxford, England) · 2026Article
- Understanding health services and puberty for autistic adolescents and those with disability: A scoping review to inform occupational therapy practice.Australian occupational therapy journal · 2026Article
- Enhancing Perinatal Care for Women With Intellectual Disabilities: Clinician Insights on Involving Family Caregivers.Journal of applied research in intellectual disabilities : JARID · 2026Article
- Barriers and facilitators impacting access to sexual and reproductive health services for women with intellectual disability.Frontiers in psychiatry · 2026Article
- "Changeons les Règles!" development and feasibility testing of an encounter decision aid for menstrual management in adolescents and young adults with developmental disabilities.PEC innovation · 2025Article
- The Role of Reproductive Injustice in the Access of Motherhood for Women With Intellectual Disabilities: A Narrative Literature Review.Journal of applied research in intellectual disabilities : JARID · 2025Review
- The Impact of Menopause on the Mental Health of Women With an Intellectual Disability: A Scoping Review.Journal of applied research in intellectual disabilities : JARID · 2025Article
- Validation of a Scale on Society's Attitudes towards the Sexuality of Women with Intellectual Disabilities-Survey Study.International journal of environmental research and public health · 2022Review
- The Rule of Law for the Exercise of Marriage and Reproductive Rights for Women with Intellectual Disabilities in China.Risk management and healthcare policy · 2022Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 3 institutions in 1 country.
Funding
Abstract
backgroundWhile people with intellectual disability (ID) face disparities relating to sexual and reproductive health (SRH) services, little is known about the role of family caregivers who assist women and girls with ID access SRH services. This scoping review examined the findings of studies to elucidate the role of family caregivers with regard to SRH for women and girls with ID.
methodWe used Arksey and O'Malley's six-stage scoping framework, with Levac, Colquhoun and O'Brien's revisions, to evaluate identified sources. We searched three electronic databases, six ID journals and reference lists in full-text articles. Inclusion criteria included (1) primary and secondary source research studies in peer-reviewed journals; (2) published in English; (3) all research methodologies (i.e. qualitative, quantitative, mixed methods and systematic reviews or commentaries); (4) published between 2000 and 2016; and (5) studies from any country.
resultsThe search yielded 2062 studies; 57 articles met inclusion criteria. Most studies employed purposive, convenience or criterion sampling. Participants included people with ID, family caregivers, paid caregivers and health-care professionals. Findings were summarised thematically: (1) menstruation and menopause; (2) vaccinations and preventive screenings; (3) supporting sexuality and healthy relationships; (4) coordinating with health-care providers and (5) contraception and sterilisation.
conclusionsFindings from this scoping review underscore the need for more and better-quality research, including how family caregivers assist women and girls with ID access perinatal and preventive SRH services and sexual abuse education. Family caregivers, women and girls with ID and health-care providers need increased access to information about SRH.
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Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.