SynthesisInternational journal of methods in psychiatric research2020
Recruitment and methodological issues in conducting dementia research in British ethnic minorities: A qualitative systematic review.
Synthesis in International journal of methods in psychiatric research, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 3 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Barriers and facilitators for engaging underrepresented ethnic minority populations in healthcare research: an umbrella review.International journal for equity in health · 2025Pooled it
- Recruitment and methodological issues in conducting dementia research in British ethnic minorities: A qualitative systematic review.International journal of methods in psychiatric research · 2020Pooled it
- Recruiting Persons With Dementia: A Systematic Review of Facilitators, Barriers, and Strategies.American journal of Alzheimer's disease and other dementiasPooled it
- Talking therapies for anxiety and depression in people affected by dementia: A scoping meta-review.Psychology and psychotherapy · 2026Article
- Barriers and facilitators to recruitment, engagement, and retention of underrepresented populations in dementia prevention research: a scoping review.The journal of prevention of Alzheimer's disease · 2026Article
- Pathways to participation - a scoping review outlining barriers and enablers to participation in dementia research.The journal of prevention of Alzheimer's disease · 2026Article
- A feasibility randomised controlled trial of Empowered Conversations: training family carers to enhance their relationships and communication with people living with dementia.Pilot and feasibility studies · 2026Article
- Sleep Disturbances and Dementia in the UK South Asian Community: A Qualitative Study to Inform Future Adaptation of the DREAMS-START Intervention.Geriatrics (Basel, Switzerland) · 2025Article
- Minoritised ethnic groups and modifiable dementia risk: a scoping review of UK-based evidence.Journal of epidemiology and community health · 2025Article
- Co-Creation Methodology for Developing a Racial Inclusivity Training Resource in Physiotherapy Education.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Article
- A multiperspective investigation of the underrepresentation of minoritized ethnic participants in dementia research and proposed strategies to improve inclusive recruitment practices.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- A relational approach to co-create Advance Care Planning with and for people living with dementia: a narrative study.BMC palliative care · 2025Article
- Understanding dementia in minority ethnic communities: The perspectives of key stakeholders interviewed as part of the IDEAL programme.Dementia (London, England) · 2024Article
- Article
- Effective interventions to increase representation of under-served groups in randomised trials in UK and Ireland: a scoping literature review.NIHR open research · 2024Article
- Levels of Loneliness and Mental Health in Older Adults across Ethnic Groups During the COVID-19 Pandemic in the UK.Journal of the American Medical Directors Association · 2023Article
- Rapid development of a COVID-19 care planning decision-aid for family carers of people living with dementia.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- A framework for preferred practices in conducting culturally competent health research in a multicultural society.Health research policy and systems · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
objectiveIdentifying existing recruitment and methodological issues within dementia research conducted in UK studies that included ethnic minorities.
methodsWe searched for and included any publication detailing dementia research in the UK that included any ethnic minority. The search results and all titles and abstracts were screened according to the inclusion criteria followed by screening of the full texts. We extracted data regarding the recruitment and methodological issues faced by the researchers. This data was combined and listed, and related issues were grouped into overarching themes and subthemes.
resultsOf 52 publications suitable for analysis, 33 provided data collated into six themes: attitudes and beliefs about dementia in ethnic minority communities, recruitment process, data collection issues, practical issues, researcher characteristics, and lack of published research and normative data. These themes allowed us to identify three areas responsible for addressing these recruitment and methodological issues: community and patient education, health services, and researchers' training.
conclusionsThis is the first review identifying recruitment and methodological issues within UK dementia research that included ethnic minorities. We now have a compilation of reported existing issues and a framework of areas responsible for addressing them and devising solutions.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.