ArticleJournal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association2020
Transforming a Face-to-Face Legacy Intervention to a Web-Based Legacy Intervention for Children With Advanced Cancer.
Article in Journal of hospice and palliative nursing : JHPN : the official journal of the Hospice and Palliative Nurses Association, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 18 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
18 citing papers in PubMed, 33 citations in OpenAlex.
- A Pilot Randomized Controlled Trial of Families Addressing Cancer Together for Parents With Cancer: Feasibility, Acceptability, and Preliminary Effects.Psycho-oncology · 2025Trial
- Randomized Clinical Trial of a Legacy Intervention for Quality of Life in Children with Advanced Cancer.Journal of palliative medicine · 2021Trial
- Associations of Age, Gender, and Family Income with Quality of Life in Children With Advanced Cancer.Journal of pediatric oncology nursing : official journal of the Association of Pediatric Oncology NursesTrial
- Digital Stories Created by Children With Advanced Cancer.Journal of pediatric hematology/oncology nursingTrial
- Ethical Considerations in Oncology and Palliative Care Research During COVID-19.Journal of pediatric hematology/oncology nursingTrial
- Pediatric home-based hospice and palliative care: a scoping review.BMC palliative care · 2026Article
- Legacy-making interventions in pediatric palliative care: A mixed methods systematic review.Asia-Pacific journal of oncology nursing · 2025Review
- Feasibility, acceptability and potential efficacy of the pediatric family-based dignity therapy for children with advanced cancer: A pilot study.Asia-Pacific journal of oncology nursing · 2025Article
- Digital storytelling as a memory-making intervention for children and families in paediatric palliative care in Ireland: an adaptation study.Frontiers in public health · 2025Article
- Effects of robot-assisted digital storytelling on hospitalized children's communication during the COVID-19 pandemic.Educational technology research and development : ETR & D · 2023Article
- Developing competencies for volunteer navigators to support caregivers of children living with medical complexity: a mixed-method e-Delphi study.Palliative care and social practice · 2023Article
- Parent's Lived Experience of Memory Making With Their Child at or Near End of Life.The American journal of hospice & palliative care · 2022Article
- Collaborative Legacy Building to Alleviate Emotional Pain and Suffering in Pediatric Cancer Patients: A Case Review.Children (Basel, Switzerland) · 2022Review
- Songwriting intervention for cognitively-impaired children with life-limiting conditions: Study protocol.Contemporary clinical trials communications · 2021Article
- Improved Parent-Child Communication following a RCT Evaluating a Legacy Intervention for Children with Advanced Cancer.Progress in palliative care · 2021Article
- Long-Term Follow-Up of Legacy Services Offered by Children's Hospitals in the United States.Palliative medicine reports · 2021Article
- Facebook Recruitment for Children with Advanced Cancer and Their Parents: Lessons from a Web-based Pediatric Palliative Intervention Study.Progress in palliative care · 2021Article
- Research Cooperative Groups in Pediatric Palliative Care Research.Palliative medicine reports · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
9 authors at 1 institution in 1 country.
Funding
Abstract
Research is needed to examine new and innovative web-based intervention delivery methods that are feasible, cost-effective, and acceptable to children and their families to increase access to palliative care services in the home and community. Our previous work included the development of a legacy intervention using face-to-face digital storytelling for children with cancer that showed feasibility and strong promise to improve child outcomes. However, face-to-face intervention delivery techniques limited our recruitment, thus decreasing sample size and potential access to broader populations. Here we present the systematic steps of the development of a web-based legacy intervention for children (7-17 years of age) with relapsed or refractory cancer and their parent caregivers. Counts and frequencies for parent (n = 81) reports on satisfaction surveys are presented and parent suggestions for future work. Results suggest the web-based legacy intervention is feasible and acceptable, with parent-perceived beneficial outcomes for the child, parent, and family. Results provide a foundation for web-based intervention development in palliative care and the implementation of a theoretically grounded intervention to reduce suffering of seriously ill children and their family members, thereby advancing the science of symptom management in vulnerable palliative care populations.
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What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.