ArticleChild: care, health and development2020
Caregivers' experiences with the new family-centred paediatric physiotherapy programme COPCA: A qualitative study.
Article in Child: care, health and development, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers.
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Who cites it
9 citing papers in PubMed.
- Trial
- The Coping with and Caring for Infants with Special Needs intervention was associated with improved motor development in preterm infants.Acta paediatrica (Oslo, Norway : 1992) · 2021Trial
- Understanding the Perspectives of Paediatric Physicians on Physiotherapy in Paediatric Rehabilitation in Chennai, India: A Qualitative Approach.Journal of preventive medicine and public health = Yebang Uihakhoe chi · 2024Article
- Analysis of a model for pediatric physical therapy and clinical education via telehealth.Journal of pediatric rehabilitation medicine · 2024Article
- Exploring the Influential Factors Impacting the Provision of Family-Centered Care for Children with Cerebral Palsy in Saudi Arabia.Children (Basel, Switzerland) · 2023Article
- Motor development in infants with complex congenital heart disease: A longitudinal study.Developmental medicine and child neurology · 2023Article
- Early Intervention in Unilateral Cerebral Palsy: Let's Listen to the Families! What Are Their Desires and Perspectives? A Preliminary Family-Researcher Co-Design Study.Children (Basel, Switzerland) · 2021Article
- Coaching approaches in early intervention and paediatric rehabilitation.Developmental medicine and child neurology · 2020Review
- Caregivers' experiences with the new family-centred paediatric physiotherapy programme COPCA: A qualitative study.Child: care, health and development · 2020Article
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3 authors.
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Abstract
backgroundCaregivers' experiences during early intervention of their infant with special needs have consequences for their participation in the intervention. Hence, it is vital to understand caregivers' view. This study explored caregivers' experiences with the family-centred early intervention programme "COPing with and CAring for infants with special needs" (COPCA).
methodsThe data of this qualitative study were collected after 6 months of COPCA intervention in 15 families with an infant with special needs. COPCA was delivered by paediatric physiotherapists in training to become COPCA coaches. Caregivers filled out a study-specific questionnaire with three open-ended questions addressing (a) their overall experience with COPCA, (b) what aspects of COPCA they had experienced as important, and (c) what they had learned during the intervention process. The answers were analysed using a content analyses approach.
resultsRespondents were mothers. Interrater reliability of the content analyses of the three questions was twice excellent (κ = .95 and κ = .92) and once good (κ = .77). The content analysis of the first question resulted in four categories and three subcategories, for example, evaluation of COPCA as a form of intervention and benefit from COPCA. The content analyses of the second question resulted in eight categories, for example, home-based intervention, support from the therapist, and the attainment of competences. The content analyses of the third question generated seven categories and four subcategories, for example, to support the infant autonomously at home and to recognize the competences of the infant, caregiver confidence, and relationship with the infant.
conclusionsThe participating mothers appreciated the COPCA early intervention programme. They especially valued its home-based setting, the support from the coach, and the experience being able to participate as active partners in the intervention make their own decisions. This means that the mothers valued the family-centred, ecological, and relationship-based elements of early intervention that currently are recommended.
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