Evidence map›Paper›PMID 31799376›Full record

ReviewNPJ Parkinson's disease2019

Advance care planning in Parkinson's disease: ethical challenges and future directions.

Leonard L Sokol, Michael J Young, Jack Paparian, Benzi M Kluger, Hillary D Lum, Jessica Besbris, Neha M Kramer, Anthony E Lang, Alberto J Espay, Ornella M Dubaz and 4 more

Open access · goldAbstract readReview
PubMed Full text at PMC Publisher
In one paragraph

Review in NPJ Parkinson's disease, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 35 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
35citing papers in PubMed, 2 pooled it
6.0field-weighted citation impact, top 4% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

35 citing papers in PubMed, 2 syntheses or guidelines pooled it, 56 citations in OpenAlex.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors at 10 institutions in 3 countries.

Leonard L Sokol1The Ken and Ruth Davee Department of Neurology, Northwestern University Feinberg School of Medicine, Chicago, IL USA.ORCID 0000-0001-5420-9297
Michael J YoungDepartment of Neurology, Massachusetts General Hospital, Harvard Medical School, Boston, MA USA.
Jack PaparianIndependent Researcher, San Francisco, CA USA.
Benzi M Kluger6Division of Neuropallaitive Care, Department of Neurology, University of Colorado School of Medicine, Aurora, CO USA.
Hillary D Lum7Eastern Colorado VA Geriatric Research Education and Clinical Center and the Division of Geriatric Medicine, Department of Medicine, University of Colorado School of Medicine, Aurora, CO USA.
Jessica Besbris8Departments of Neurology and Supportive Care Medicine, Cedars-Sinai Medical Center, Los Angeles, CA USA.
Neha M Kramer9Departments of Medicine (Section of Palliative Medicine) and Neurology, Rush University School of Medicine, Chicago, IL USA.
Anthony E Lang10The Edmond J. Safra Program in Parkinson's Disease and the Morton and Gloria Shulman Movement Disorders Clinic, University Health Network, University of Toronto, Toronto, ON Canada.
Alberto J Espay11Gardner Family Center for Parkinson's Disease and Movement Disorders, Department of Neurology, University of Cincinnati College of Medicine, Cincinnati, OH USA.
Ornella M Dubaz1The Ken and Ruth Davee Department of Neurology, Northwestern University Feinberg School of Medicine, Chicago, IL USA.ORCID 0000-0003-0496-255X
Janis M Miyasaki13Department of Medicine, Division of Neurology, Parkinson and Movement Disorders Program and the Complex Neurologic Symptoms Clinic, Kaye Edmonton Clinic, University of Alberta, Edmonton, AL Canada.
Daniel D Matlock7Eastern Colorado VA Geriatric Research Education and Clinical Center and the Division of Geriatric Medicine, Department of Medicine, University of Colorado School of Medicine, Aurora, CO USA.
Tanya Simuni1The Ken and Ruth Davee Department of Neurology, Northwestern University Feinberg School of Medicine, Chicago, IL USA.
Moran Cerf14Interdepartmental Neuroscience Program, Northwestern University, Evanston, IL USA.
Northwestern University · USGeriatric Research Education and Clinical Center · USCedars-Sinai Medical Center · USFilm Independent · USHarvard University · USRush University · USUniversity Health Network · CAUniversity of Alberta · CAUniversity of Cincinnati Medical Center · USUniversity of Colorado Denver · US

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Recent discoveries support the principle that palliative care may improve the quality of life of patients with Parkinson's disease and those who care for them. Advance care planning, a component of palliative care, provides a vehicle through which patients, families, and clinicians can collaborate to identify values, goals, and preferences early, as well as throughout the disease trajectory, to facilitate care concordant with patient wishes. While research on this topic is abundant in other life-limiting disorders, particularly in oncology, there is a paucity of data in Parkinson's disease and related neurological disorders. We review and critically evaluate current practices on advance care planning through the analyses of three bioethical challenges pertinent to Parkinson's disease and propose recommendations for each.

Indexed as

HistoryHuman behaviourParkinson's disease

Identifiers

PMID31799376
PMCPMC6874532
OpenAlexW2991488749

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.