Evidence map›Paper›PMID 31791933›Full record

ArticleIndian journal of medical ethics

Why parents consent to their children's participation in genetic research: A study of parental decision making.

Sunita Kumari, Triptish Bhatia, Nagendra N Mishra, Nupur Kumari, Sreelatha S Narayanan, Deepak Malik, Smita N Deshpande

Open access · bronzeAbstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in Indian journal of medical ethics. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed, 1 pooled it
1.5field-weighted citation impact, top 15% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 1 synthesis or guideline pooled it, 5 citations in OpenAlex.

  1. Pooled it
  2. Disability Certification in Psychiatry.Indian journal of psychiatry · 2022
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors at 4 institutions in 1 country.

Sunita KumariSocial Worker, Dept. of Psychiatric Social Work, Centre of Excellence in Mental Health, Atal Bihari Vajpayee Institute of Medical Sciences (formerly PGIMER) and Dr Ram Manohar Lohia Hospital , New Delhi 110 001, INDIA.
Triptish BhatiaSenior Research Scientist, Indo-US Projects, Centre of Excellence in Mental Health, Dept. of Psychiatry, Atal Bihari Vajpayee Institute of Medical Sciences and Dr Ram Manohar Lohia .Hospital, New Delhi-110001, INDIA.
Nagendra N MishraAssistant Professor and HOD, Dept. of Psychology, LS College, Muzaffarpur, Bihar, INDIA.
Nupur KumariJunior Research Fellow, SATYAM project, Centre of Excellence in Mental Health, Dept. of Psychiatry, Atal Bihari Vajpayee Institute of Medical Sciences and Dr Ram Manohar Lohia.Hospital, New Delhi 110 001, INDIA.
Sreelatha S NarayananSenior Research Fellow, Institute of Home Economics, University of Delhi, Delhi, INDIA.
Deepak MalikScientist 'B', Division of Sociobehavioural and Health Systems Research, Indian Council of Medical Research, New Delhi 110 001 INDIA.
Smita N DeshpandeSenior Consultant and Professor, Dept. of Psychiatry, Centre of Excellence in Mental Health, Atal Bihari Vajpayee Institute of Medical Sciences and Dr. Ram Manohar Lohia Hospital, New Delhi 110001, INDIA.
Atal Bihari Vajpayee Institute of Medical Sciences and Dr. Ram Manohar Lohia Hospital · INBabasaheb Bhimrao Ambedkar Bihar University · INIndian Council of Medical Research · INUniversity of Delhi · IN

Funding

Psychiatric research infrastructure for intervention and implementation in India – TEAMSD43TW009114 · FIC · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI Smita N Deshpande, Mary Elizabeth Hawk · 2014 to 2026
$3.2M
Tri National Training Program in Psychiatric GeneticsD43TW008302 · FIC · UNIVERSITY OF PITTSBURGH AT PITTSBURGH · PI MANSOUR, HADER A., NIMGAONKAR, VISHWAJIT LAXMIKANT · 2009 to 2013
$542k
FIC NIH HHS D43 TW008302FIC NIH HHS D43 TW009114
6 · The paper itself

Abstract

Parents need to be asked to provide informed consent on behalf of their child for participation in genetic research. Decision making for such parents is difficult because ethical challenges in paediatric genetic research studies are different from similar adult studies. This paper focuses on interviews conducted with parents who were asked to consent to their children's participation (or not) in a genetic research study of intellectual disability and/or autism.

Indexed as

AdolescentAdultChildChild, PreschoolDecision MakingFemaleGenetic ResearchHumansIndiaInfantInfant, NewbornInformed Consent By MinorsMaleMiddle AgedParentsPatient Participation

Identifiers

PMID31791933
PMCPMC7018624
OpenAlexW2988502637

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.