ArticleHealth expectations : an international journal of public participation in health care and health policy2020
Exploring the potential use of patient and public involvement to strengthen Indonesian mental health care for people with psychosis: A qualitative exploration of the views of service users and carers.
Article in Health expectations : an international journal of public participation in health care and health policy, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 1 of them a synthesis that pooled it.
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Who cites it
16 citing papers in PubMed, 1 synthesis or guideline pooled it, 46 citations in OpenAlex.
- Co-Production within Child and Adolescent Mental Health: A Systematic Review.International journal of environmental research and public health · 2021Pooled it
- Exploration of Factors That Affect Engagement With the Experience Sampling Method and Service Users' Experience of This Within the AVATAR2 Trial: Mixed Methods Study.JMIR formative research · 2025Article
- Working With People With Experience of Psychosis to Co-Design an Educational and Anti-Stigma Psychosis Intervention for Schools.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Examining the challenges encountered by community health workers and empowering them to address mental health disorders: A qualitative study in Indonesia.International journal of nursing sciences · 2025Article
- Content, implementation, and evaluation of capacity-strengthening initiatives for public and patient involvement in mental health research: a scoping review protocol informed by implementation science.HRB open research · 2025Article
- An exploration of the Indonesian lay mental health workers' (cadres) experiences in performing their roles in community mental health services: a qualitative study.International journal of mental health systems · 2024Article
- Co-producing research on psychosis: a scoping review on barriers, facilitators and outcomes.International journal of mental health systems · 2023Article
- Healthcare Professionals' Experiences with Patient Participation in a Mental Healthcare Centre: A Qualitative Study.International journal of environmental research and public health · 2023Article
- Factors associated with Indonesian family physicians' knowledge of depression: A cross-sectional study.Malaysian family physician : the official journal of the Academy of Family Physicians of Malaysia · 2023Article
- Multiple stakeholders' perspectives on patient and public involvement in community mental health services research: A qualitative analysis.Health expectations : an international journal of public participation in health care and health policy · 2022Article
- Investments for effective functionality of health systems towards Universal Health Coverage in Africa: A scoping review.PLOS global public health · 2022Article
- Mental health literacy amongst children with common mental health problems and their parents in Java, Indonesia: a qualitative study.Global mental health (Cambridge, England) · 2022Article
- Types of stigma experienced by patients with mental illness and mental health nurses in Indonesia: a qualitative content analysis.International journal of mental health systems · 2021Article
- Civic engagement and mental health system strengthening in Indonesia: a qualitative examination of the views of health professionals and national key stakeholders.BMC psychiatry · 2020Article
- Exploring the potential use of patient and public involvement to strengthen Indonesian mental health care for people with psychosis: A qualitative exploration of the views of service users and carers.Health expectations : an international journal of public participation in health care and health policy · 2020Article
- Implementing civic engagement within mental health services in South East Asia: a systematic review and realist synthesis of current evidence.International journal of mental health systems · 2020Review
Corrections and comments
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Authors and funding
9 authors at 8 institutions in 3 countries.
Funding
Abstract
backgroundPatient and public involvement (PPI) has the potential to strengthen mental health systems in Indonesia and improve care for people living with psychosis. Current evidence from other parts of the world demonstrates the need to understand the contexts in which PPI is to be enacted to ensure optimal implementation.
objectiveTo understand service users' and carers' views on the current use and potential applicability of PPI within Indonesian mental health services.
designQualitative study incorporating focus groups analysed using thematic analysis. SETTING AND
participantsParticipants included 22 service users and 21 carers recruited from two study sites in Indonesia (Jakarta and Bogor). All participants had experience of psychosis either as a service user or carer.
resultsDespite the value attributed to PPI in relation to improving services and promoting recovery, current use of such activities in Indonesian mental health services was limited. Participants expressed a desire for greater levels of involvement and more holistic care but felt community organizations were best placed to deliver this because PPI was considered more congruent with the ethos of third-sector organizations. Additional barriers to PPI included stigma and low levels of mental health literacy in both health services and communities. DISCUSSION AND
conclusionParticipants felt that there was potential value in the use of PPI within Indonesian mental health services with careful consideration of individual contexts. Future aspirations of involvement enactment should ensure a central design and delivery role for third-sector organizations. Facilitators to global collaborative research in the context of the current study are also discussed.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.