ArticleBMC palliative care2019
What motivates informal caregivers of people with dementia (PWD): a qualitative study.
Article in BMC palliative care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 11 papers.
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Who cites it
11 citing papers in PubMed.
- Family caregivers' perspectives on ethical challenges in dementia care.Nursing ethics · 2026Article
- Multilevel influences on family caregiver burden in diabetic foot ulcer care: a qualitative study.BMC nursing · 2026Article
- Co-design of an Online Mindfulness Program for Informal Carers of People Living With Dementia: A Qualitative Study of Co-designers' Experience.Dementia (London, England) · 2026Article
- The Role of Religion and Culture in Intergenerational Transnational Caregiving: Perspectives from Nigerian Christian Immigrants in Northern BC.Behavioral sciences (Basel, Switzerland) · 2025Article
- Family caregivers' perceptions of quality of dementia self-care in Wakiso district, Uganda.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Article
- Exploring Caring Motivation Barriers among Mothers of Children with Intellectual and Developmental Disabilities: A Qualitative Content Analysis.International journal of community based nursing and midwifery · 2025Article
- The family caregiving; A Rogerian concept analysis of Muslim perspective & Islamic sources.Heliyon · 2024Review
- Aging and Caring: Exploring Older Adults' Motivation for Informal Caregiving to Other Aging Individuals in Nigeria.Innovation in aging · 2024Article
- Recruitment of family caregivers of persons with dementia: Lessons learned from a pilot randomized controlled trial.Frontiers in pain research (Lausanne, Switzerland) · 2023Article
- Experiences of family caregivers of patients with COVID-19.BMC family practice · 2021Article
- Does the Experience of Caring for a Severely Disabled Relative Impact Advance Care Planning? A Qualitative Study of Caregivers of Disabled Patients.International journal of environmental research and public health · 2020Article
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundThe burden of caring for People with Dementia (PWD) is heavy; identifying incentives that motivate them in providing care is essential in facilitating and optimizing care. This study aims to explore and describe these motivating factors.
methodsWe conducted this qualitative study between January 2016 and January 2017 in Isfahan, Iran. Data were extracted through in-depth, semi-structured interviews with 19 caregivers of PWD. These data were then examined through thematic content analysis.
resultsWe identified four categories of psychological motives based on the caregivers' feedback and experience. These include 1) Moral-based motives, 2) Religious, and spiritual motives; 3) Financial motives, and 4) Wicked motives.
conclusionsOur results revealed several aspects of caregivers' motives. They include moral, religious, and spiritual aspects; sharing housing accommodations, and the likelihood of inheriting a portion of the patient's assets based on unspoken rules and informal arrangements in the family, and wicked and immoral aspects. These findings can inform future efforts in enhancing the experiences of caregivers of PWD, and subsequently, the quality of care these patients receive. It further suggests that family members, members of a religious and spiritual organization, as well as social media, could play important roles in setting the stage.
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