ArticleJournal of health psychology2021
Co-afflicted but invisible: A qualitative study of perceptions among informal caregivers in cancer care.
Article in Journal of health psychology, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 1 of them a synthesis that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
22 citing papers in PubMed, 1 synthesis or guideline pooled it, 50 citations in OpenAlex.
- The Role of Social Support in the Experience of Informal Caregivers of Cancer Patients: An Umbrella Review.Psycho-oncology · 2026Pooled it
- Support needs of young people caring for their parents with cancer.Journal of cancer survivorship : research and practice · 2026Article
- Family carers' experiences of serious illness conversations in haematological malignancies - a qualitative interview study.BMC palliative care · 2026Article
- "The Day He Fell Ill, We Turned on a Switch…Now, Everything Is My Responsibility": Scoping Review of Qualitative Studies Among Partners of Patients with Cancer.Current oncology (Toronto, Ont.) · 2026Review
- How much are we willing to do for the ones we love - impact on caregivers of patients suffering from periprosthetic joint infections: a qualitative study.Journal of bone and joint infection · 2026Article
- Building Better Website Resources: What People Diagnosed with Sarcoma and Their Carers Want to Know.Current oncology (Toronto, Ont.) · 2025Article
- The effect of mindfulness-based stress reduction on anxiety and sleep quality in informal family caregivers of cancer patients: a randomized controlled trial.BMC nursing · 2025Article
- Unseen burden: Exploring caregiver experiences, barriers, and facilitators in foregut cancer care.Surgical oncology insight · 2025Article
- Time value of informal care of people with alzheimer's disease in Spain: a population-based analysis.The European journal of health economics : HEPAC : health economics in prevention and care · 2025Article
- Patient and Caregiver Perceptions of Caregiving Contributions During Cancer Clinical Trials: A Mixed-Methods Study.Cancer medicine · 2025Article
- The complexity of needs and roles of family members during breast cancer rehabilitation: a qualitative study.BMC cancer · 2024Article
- Informing a Future Clinician-Led Virtual Reality Experience Through Oncology Caregivers' Pre-Treatment Preparation Experiences.Delaware journal of public health · 2024Article
- Family Caregiver Reports of Their Own and Patient Symptoms in Cancer Home Hospice Approaching End-of-Life.The American journal of hospice & palliative care · 2023Article
- Ambiguous loss in family caregivers of loved ones with cancer, a synthesis of qualitative studies.Journal of cancer survivorship : research and practice · 2023Review
- Caring for the Family Caregiver: Development of a Caregiver Clinic at a Cancer Hospital as Standard of Care.Journal of clinical psychology in medical settings · 2023Article
- The roles and experiences of informal carers providing care to people with advanced cancer in Africa-A systematic review and critical interpretive analysis.PLOS global public health · 2023Article
- Association between work status and depression in informal caregivers: a collaborative modelling approach.European journal of public health · 2022Article
- "We're on a Merry-Go-Round": Reflections of Patients and Carers after Completing Treatment for Sarcoma.Current oncology (Toronto, Ont.) · 2021Article
- In-home conversations of couples with advanced cancer: Support has its costs.Psycho-oncology · 2020Observational
- I-Poems: A Window Into the Personal Experiences of Family Caregivers of People Living With Advanced Cancer.Nursing researchArticle
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
4 authors at 2 institutions in 2 countries.
Funding
No grant is acknowledged in the PubMed record.
Abstract
This article explores the lived experience of informal caregivers in cancer care, focusing on the perceived burden and needs of individuals seeking support from an informal group for next of kin. A total of 28 individuals who were closely related to a patient with cancer participated in focus group interviews. Three themes were identified: setting aside one's own needs, assuming the role of project manager, and losing one's sense of identity. Together they form the framing theme: being co-afflicted. The characteristics of informal caregivers are shown to be similar to those of people with codependency, motivating development of targeted interventions from this perspective.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.