ArticleACR open rheumatology2019
Patient-Reported Barriers at School for Children with Juvenile Idiopathic Arthritis.
Article in ACR open rheumatology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 16 papers, 2 of them syntheses that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
16 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- A systematic review of the social functioning of youth with JIA: Barriers, stigma, and resources.Journal of pediatric psychology · 2026Pooled it
- Factors that influence school attendance and participation in children and adolescents with juvenile idiopathic arthritis - a systematic review of the literature.Pediatric rheumatology online journal · 2025Pooled it
- Markerless gait analysis for children and adolescents with juvenile idiopathic arthritis using a machine learning pipeline.Pediatric rheumatology online journal · 2026Article
- Symptoms and correlates of depression and anxiety in children and adolescents with juvenile idiopathic arthritis.Orphanet journal of rare diseases · 2026Article
- Exploring academic achievement and relevant risk factors among a community sample of adolescents with chronic pain compared to peers.Journal of pediatric psychology · 2025Article
- Digital Interventions for Patients With Juvenile Idiopathic Arthritis: Systematic Review and Meta-Analysis.JMIR pediatrics and parenting · 2025Review
- Real-world psychosocial impact among patients with juvenile idiopathic arthritis and families in Spain.Pediatric rheumatology online journal · 2024Observational
- Handwriting speed in juvenile idiopathic arthritis using the detailed assessment of speed of handwriting.Pediatric rheumatology online journal · 2024Article
- Bone health and physical activity in adolescents with juvenile idiopathic arthritis: a cross-sectional case-control study.Pediatric rheumatology online journal · 2024Article
- Using Digital Health Technologies to Monitor Pain, Medication Adherence and Physical Activity in Young People with Juvenile Idiopathic Arthritis: A Feasibility Study.Healthcare (Basel, Switzerland) · 2024Article
- Behavioral health outcomes and social determinants of health in children with diabetes and juvenile arthritis.Research square · 2023Article
- [Analysis of movement disorders in paediatric and adolescent rheumatology].Orthopadie (Heidelberg, Germany) · 2023Review
- Does Diagnostic Certainty Matter?: Pain-Related Stigma in Adolescents with Juvenile Idiopathic Arthritis.Journal of pediatric psychology · 2023Article
- Synovial fluid mesenchymal progenitor cells from patients with juvenile idiopathic arthritis demonstrate limited self-renewal and chondrogenesis.Scientific reports · 2022Article
- Secondary consequences of juvenile idiopathic arthritis in children and adolescents with knee involvement: physical activity, adiposity, fitness, and functional performance.Rheumatology international · 2022Observational
- Supporting Primary School Children with Juvenile Idiopathic Arthritis: A Qualitative Investigation of Teaching Staff Experiences.Children (Basel, Switzerland) · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThe objective of this study was to identify patient-reported school barriers and their associated impact in juvenile idiopathic arthritis (JIA).
methodsA cross-sectional observational study of children aged 8 to 17, diagnosed with JIA, and followed in the rheumatology clinic/Alberta Children's Hospital was performed. Demographics, diagnosis, and disease course were obtained from health records. A questionnaire was administered to the child to assess the barriers experienced by JIA patients at school. The questionnaire collected information about school attendance/performance, impact of JIA symptoms (eg, pain and fatigue), physical challenges and accommodations, communication, participation and peers, and school support. Descriptive statistics were used to analyze the data.
resultsA total of 98 children with JIA were recruited into the study. The median age of participants was 13 years (interquartile range 11-15). The JIA subtypes in this cohort reflected the normal JIA distribution. Physical challenges at school (eg, gym, writing, and sitting for long periods of time) were reported by 42.1% of patients. Accommodations (eg, modified gym, accommodation letter, and computer access) were used by 23% of patients. The inability to participate in activities in class or outside with their peers occurred for 32.2% of patients and in gym for 40.7% of patients. Social concerns included embarrassment from talking about their illness, worry regarding being treated differently, and being told they were fabricating their illness.
conclusionChildren with JIA experienced barriers at school, especially physical challenges, with a need for accommodations in a proportion of children. Decreased participation and increased social anxiety were additional key barriers.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.