Observational studyJournal of global oncology2019
To Tell or Not to Tell: Exploring the Preferences and Attitudes of Patients and Family Caregivers on Disclosure of a Cancer-Related Diagnosis and Prognosis.
Observational study in Journal of global oncology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 28 papers, 1 of them a synthesis that pooled it.
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Who cites it
28 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Asian patients' perspectives on advance care planning: A mixed-method systematic review and conceptual framework.Palliative medicine · 2021Pooled it
- Time toxicity during palliative chemotherapy for advanced malignancies: a prospective study.BMJ supportive & palliative care · 2025Observational
- Spiritual wellbeing and psychiatric comorbidity among patients with advanced-stage solid tumor cancer.Indian journal of psychiatry · 2025Article
- Family caregivers' role in dignity: A qualitative study can we change the title to : Dignity in Serious Illness: A Qualitative Exploration of Family Caregivers' Contributions in low middle-income country.Palliative & supportive care · 2025Article
- What Have You Been Told? Awareness of Prognosis of Patients in an Italian Home Palliative Care Service.Palliative medicine reports · 2025Article
- Conspiracy of Silence in Head and Neck Cancer Diagnosis: A Scoping Review.Dentistry journal · 2024Article
- Telling the truth to patients before hip fracture surgery.BMC medical ethics · 2024Article
- Quality of life and its predictors among patients with metastatic cancer in Bangladesh: the APPROACH survey.BMC palliative care · 2024Article
- Patient and caregiver perspectives of select non-communicable diseases in India: A scoping review.PloS one · 2024Article
- Can Oncologists Prompt Patient Prognostic Awareness to Enhance Decision-Making? Data From the NEOetic Study.The oncologist · 2023Article
- Communication in Cancer Care in Asia: A Narrative Review.JCO global oncology · 2023Review
- Factors associated with knowledge of diagnosis, prognosis & distress in cancer patients receiving palliative care - A retrospective cohort analysis.The Indian journal of medical research · 2023Article
- Barriers to home exercise for patients with Parkinson's disease: a qualitative study.BMJ open · 2023Article
- Cancer Genetic Services in a Low- to Middle-Income Country: Cross-Sectional Survey Assessing Willingness to Undergo and Pay for Germline Genetic Testing.JCO global oncology · 2023Article
- Psychological Support for Cancer Patients.Cancer treatment and research · 2023Article
- Providing person-centered palliative care in conflict-affected populations in the Middle East: What matters to patients with advanced cancer and families including refugees?Frontiers in oncology · 2023Article
- Prognostic disclosure in oncology - current communication models: a scoping review.BMJ supportive & palliative care · 2022Article
- Health literacy in communication, decision-making and outcomes among cancer patients, their families and clinicians in India: A multicentre cross-sectional qualitative study.Psycho-oncology · 2022Article
- Prognostic disclosure in cancer care: a systematic literature review.Palliative care and social practice · 2022Review
- Influencing factors of depressive symptoms in patients with malignant tumour.The Journal of international medical research · 2021Article
Corrections and comments
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Authors and funding
8 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeTo understand the preferences and attitudes of patients and family caregivers on disclosure of cancer diagnosis and prognosis in an Indian setting.
methodsOverall, 250 adult patients with cancer and 250 family caregivers attending the outpatients of a tertiary cancer hospital for the first time were recruited purposively. The mean ages of patients and caregivers were 49.9 years (range, 23-80 years) and 37.9 years (range, 19-67 years), respectively. Separately, they completed prevalidated, close-ended preference questions and were interviewed for open-ended attitude questions.
resultsA total of 250 adult patients (response rate, 47.17% overall, 73.2% in men, and 26.8% in women) and 250 family caregivers (response rate, 40.65% overall, 84.0% in men, and 16.0% in women) participated. Significant differences were observed in the preference to full disclosure of the name of illness between patients (81.2%) and caregivers (34.0%) and with the expected length of survival between patients (72.8%) and caregivers (8.8%;
conclusionPatients with cancer preferred full disclosure of their diagnoses and prognoses, whereas the family caregivers preferred nondisclosure of the same to their patients. This novel information obtained through a large study with varied participants from different parts of the country will help formulate communication strategies for cancer care.
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