ArticleHaemophilia : the official journal of the World Federation of Hemophilia2020
An international survey to inform priorities for new guidelines on von Willebrand disease.
Article in Haemophilia : the official journal of the World Federation of Hemophilia, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 4 of them syntheses that pooled it.
What it found
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Who cites it
21 citing papers in PubMed, 4 syntheses or guidelines pooled it.
- Laboratory assays of VWF activity and use of desmopressin trials in the diagnosis of VWD: a systematic review and meta-analysis.Blood advances · 2022Pooled it
- Surgical management of patients with von Willebrand disease: summary of 2 systematic reviews of the literature.Blood advances · 2022Pooled it
- von Willebrand factor levels in the diagnosis of von Willebrand disease: a systematic review and meta-analysis.Blood advances · 2022Pooled it
- Bleeding assessment tools in the diagnosis of VWD in adults and children: a systematic review and meta-analysis of test accuracy.Blood advances · 2021Pooled it
- Seventh Åland Island Meeting on von Willebrand Disease.Haemophilia : the official journal of the World Federation of Hemophilia · 2026Article
- A new era for heavy menstrual bleeding.Blood advances · 2026Article
- Community engagement in health guidelines and other normative products: a methodological review.Bulletin of the World Health Organization · 2025Review
- Article
- Low von Willebrand factor-unraveling an enigma wrapped in a conundrum.Journal of thrombosis and haemostasis : JTH · 2024Review
- Patient-reported data on the severity of Von Willebrand disease.Haemophilia : the official journal of the World Federation of Hemophilia · 2024Article
- Exposure-Response Relationship between VWF/FVIII Activity and Spontaneous Bleeding Events Following Recombinant VWF Prophylaxis in Severe VWD.TH open : companion journal to thrombosis and haemostasis · 2024Article
- Variability in International Society on Thrombosis and Haemostasis-Scientific and Standardization Committee endorsed Bleeding Assessment Tool (ISTH-BAT) score with normal aging in healthy females: contributory factors and clinical significance.Journal of thrombosis and haemostasis : JTH · 2023Article
- Gynecologic and obstetric management of women with von Willebrand disease: summary of 3 systematic reviews of the literature.Blood advances · 2022Article
- Methods to Generate Innovative Research Ideas and Improve Patient and Public Involvement in Modern Epidemiological Research: Review, Patient Viewpoint, and Guidelines for Implementation of a Digital Cohort Study.Journal of medical Internet research · 2021Review
- Hemostatic profile detailing in apparent VWD cases: A cross sectional study.Saudi journal of biological sciences · 2021Article
- [ASH ISTH NHF WFH 2021 guidelines on the diagnosis of von Willebrand disease].Zhonghua xue ye xue za zhi = Zhonghua xueyexue zazhi · 2021Article
- ASH ISTH NHF WFH 2021 guidelines on the diagnosis of von Willebrand disease.Blood advances · 2021Article
- ASH ISTH NHF WFH 2021 guidelines on the management of von Willebrand disease.Blood advances · 2021Article
- Women and bleeding disorders: diagnostic challenges.Hematology. American Society of Hematology. Education Program · 2020Review
- New developments in von Willebrand disease.British journal of haematology · 2020Review
Corrections and comments
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Authors and funding
8 authors.
Funding
Abstract
introductionvon Willebrand disease (VWD) is an inherited bleeding disorder caused by a quantitative or qualitative dysfunction of von Willebrand factor. Clinicians, patients and other stakeholders have many questions about the diagnosis and management of the disease.
aimTo identify topics of highest importance to stakeholders that could be addressed by guidelines to be developed by the American Society of Hematology (ASH), the International Society on Thrombosis and Haemostasis (ISTH), the National Hemophilia Foundation (NHF) and the World Federation of Hemophilia (WFH).
methodsA survey to determine and prioritize topics to be addressed in the collaborative development of guidelines for VWD was distributed to international stakeholders including patients, caregivers and healthcare providers (HCPs). Representatives of the four organizations coordinated the distribution strategy. The survey focused on both diagnosis and management of VWD, soliciting 7-point Likert-scale responses and open-ended comments, in English, French and Spanish. We conducted descriptive analysis with comparison of results by stakeholder type, gender and countries' income classification for the rating questions and qualitative conventional content data analysis for the open-ended responses.
resultsA total of 601 participants responded to the survey (49% patients/caregivers and 51% healthcare providers). The highest priority topics identified were diagnostic criteria/classification, bleeding assessment tools and treatment options for women and surgical patients. In contrast, screening for anaemia and differentiating plasma-derived therapy versus recombinant therapies received lower ratings.
conclusionThis survey highlighted areas of importance to a diverse representation of stakeholders in the diagnosis and management of VWD, providing a framework for future guideline development and implementation.
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