Observational studyBMJ open2019
Recall of health-related quality of life: how does memory affect the SF-6D in patients with psoriasis or multiple sclerosis? A prospective observational study in Germany.
Observational study in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers, 3 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
19 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Systematic Review of the Effect of a One-Day Versus Seven-Day Recall Duration on Patient Reported Outcome Measures (PROMs).The patient · 2023Pooled it
- Health-related quality of life after otologic surgical treatment for chronic otitis media: systematic review.Frontiers in neurology · 2023Pooled it
- Validated Tools to Measure Costs for Patients: A Systematic Review.The patient · 2022Pooled it
- Psychometric validation of a cognition and social participation bolt-on for the EQ-5D-5L in SARS-CoV-2 infected German healthcare workers.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2026Article
- Depression, trauma, stressful life events and childhood infections in patients with multiple sclerosis in the Polish population - a case-control study.Postepy psychiatrii neurologii · 2026Article
- Development of the Chronic Sialadenitis Outcome Test-14 for Chronic Sialadenitis.The Laryngoscope · 2026Article
- Content validation of the Wound-QoL questionnaire measuring quality of life in chronic wounds - a qualitative study in patients with leg ulcers and diabetic foot ulcers.Journal of patient-reported outcomes · 2025Article
- Knowledge, attitude and practice toward probiotics among the general population: a cross-sectional study.Scientific reports · 2025Article
- Sexual satisfaction and function (SatisFunction) survey post-vaginoplasty for transgender and gender diverse individuals: preliminary development and content validity for future clinical use.Sexual medicine · 2025Article
- Using primary and routinely collected data to determine prevalence and patterns of multimorbidity in rural China: a representative cross-sectional study of 6474 Chinese adults.The Lancet regional health. Western Pacific · 2025Article
- Population Norms for the EQ-5D-5L, PROPr and SF-6D in Hungary.PharmacoEconomics · 2024Article
- Systematic Literature Review of Studies Reporting Measures of Functional Outcome or Quality of Life in People with Negative Symptoms of Schizophrenia.Patient related outcome measures · 2024Review
- Psychometric evaluation of the Urgency NRS as a new patient-reported outcome measure for patients with ulcerative colitis.Journal of patient-reported outcomes · 2022Article
- Towards personalized and value-based spine care: objective patient monitoring with smartphone activity data.Journal of spine surgery (Hong Kong) · 2022Article
- How to measure fluctuating impairments in people with MS: development of an ambulatory assessment version of the EQ-5D-5L in an exploratory study.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2021Article
- Development of otology specific outcome measure: Ear Outcome Survey-16 (EOS-16).Journal of otology · 2021Article
- Relationships Between Self-Rated Health at Three Time Points: Past, Present, Future.Frontiers in psychology · 2021Article
- Conventional and retrospective change in health-related quality of life of trauma patients: an explorative observational follow-up study.Health and quality of life outcomes · 2020Observational
- Neurological Health: Not Merely the Absence of Disease: Current Wellbeing Instruments Across the Spectrum of Neurology.American journal of lifestyle medicineArticle
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectiveThis study aimed to quantify recall bias in the measurement of health-related quality of life (HRQoL), that is, the extent to which recollection is impaired and leads to distorted judgements.
designProspective observational study. SETTING AND
participantsOne hundred patients with two paradigmatic chronic diseases (50 with multiple sclerosis and 50 with psoriasis) were recruited at two outpatient clinics. METHODS AND OUTCOME MEASURES: Patients completed the online version of the 12-Item Short Form Survey (SF-12) repeatedly for 28 consecutive days: (1) daily, considering the past 24 hours; (2) weekly, considering the past 7 days; and (3) on the last day of data collection, considering the past 4 weeks. SF-12 scores for all three measurement approaches were subsequently converted into preference-based utility indices (Short-Form Six-Dimension). Agreement of the three indices was analysed on group and individual patient levels.
resultsThe mean age of participants was 40.3 years (±12.0), and 63% were female. The utility index based on daily recall (0.74±0.13) was more positive than indices based on a weekly (0.70±0.13, p<0.001) or a monthly (0.70±0.14, p<0.001) recall. While agreement of measurement approaches was high on group level (intraclass correlation coefficient>0.85), it was lower for the subgroup of patients experiencing high variability of HRQoL over time. Bland-Altman plots revealed considerable differences on individual patient level.
conclusionsOn the group level, retrospective overestimation and underestimation of HRQoL almost cancelled out one another and recall bias was relatively small. Therefore, a 4-week recall period could be appropriate when group-level data are used for research or economic evaluations. In contrast, recall bias can be considerable on the individual patient level and may thus impact decision-making in clinical practice. TRIAL REGISTRATION NUMBER: VfD_RECALL_16_003837.
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