ReviewBMC medical research methodology2019
A review and synthesis of frameworks for engagement in health research to identify concepts of knowledge user engagement.
Review in BMC medical research methodology, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT05437939 (Identifying Opportunities for Prevention of Adverse Outcomes Following Female Genital), which is not on this map. Cited by 44 papers, 1 of them a synthesis that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Identifying Opportunities for Prevention of Adverse Outcomes Following Female Genital
Who cites it
44 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Barriers and Enablers of Primary Healthcare Professionals in Health Research Engagement: A Systematic Review of Qualitative Studies.Nursing & health sciences · 2025Pooled it
- Balancing Trade-Offs in Patient and Public Involvement and Engagement in Rapid Evaluation: Reflections and Lessons.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Engaging community oncology stakeholders to plan multisite cancer caregiving research (CONNECT WF-2300CD).JNCI cancer spectrum · 2026Article
- A qualitative descriptive study to explore evaluation and effects of partnered rehabilitation research in Canada.Health research policy and systems · 2026Article
- Exploring perspectives of knowledge users about reporting on health equity in observational studies: a qualitative study informing the development of the STROBE-Equity reporting guideline.International journal for equity in health · 2026Article
- Barriers and facilitators to knowledge translation in Brazilian health: insights from the Grand Challenges Brazil case study.Health research policy and systems · 2026Article
- Identifying a program's "core components" using a co-design approach: a methodological worked example from a youth mental health and addictions navigation service.Research involvement and engagement · 2026Article
- Principles and Strategies for Interest-Holder Engagement in Health Guideline Development.Journal of evaluation in clinical practice · 2026Article
- Developing and applying the 'Participatory Research to Action Framework' for meaningful engagement of experts-by-experience in applied health services research: a case study approach.Research involvement and engagement · 2025Article
- A field-test of Not Deciding Alone to support Inuit with health decision making: co-production of a mixed methods study guided by aajiiqatigiingniq.International journal of circumpolar health · 2025Article
- Characterizing research partnerships in child health research: A scoping review.Journal of child health care : for professionals working with children in the hospital and community · 2025Article
- 'There has to be some chemistry there': an interpretive description exploring the experiences, motivations and dynamics of partnered child health research.Research involvement and engagement · 2025Article
- How are patient partners involved in health service research? A scoping review of reviews.Research involvement and engagement · 2025Review
- Partnered health research in Canada: a cross-sectional survey of perceptions among researchers and knowledge users involved in funded projects between 2011 and 2019.Health research policy and systems · 2025Article
- Attitudes and perceptions regarding knowledge translation and community engagement in medical research: the PERSPECT qualitative study.Health research policy and systems · 2025Article
- The triple integration of data, users and policies required for successful climate health solutions.NPJ digital medicine · 2025Article
- A review of reported stakeholder engagement in early-stage translational research.Journal of clinical and translational science · 2025Article
- Knowledge, attitudes and behaviours of evidence-informed practice in respiratory therapy: A cross-sectional survey.Canadian journal of respiratory therapy : CJRT = Revue canadienne de la therapie respiratoire : RCTR · 2025Article
- Integrated knowledge translation (iKT) in preclinical research: A scoping review protocol.PloS one · 2025Article
- Outcomes of an integrated knowledge translation approach in five African countries: a mixed-methods comparative case study.Health research policy and systems · 2024Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
Abstract
backgroundEngaging those who influence, administer and/or who are active users ("knowledge users") of health care systems, as co-producers of health research, can help to ensure that research products will better address real world needs. Our aim was to identify and review frameworks of knowledge user engagement in health research in a systematic manner, and to describe the concepts comprising these frameworks.
methodsAn international team sharing a common interest in knowledge user engagement in health research used a consensus-building process to: 1) agree upon criteria to identify articles, 2) screen articles to identify existing frameworks, 3) extract, analyze data, and 4) synthesize and report the concepts of knowledge user engagement described in health research frameworks. We utilized the Patient Centered Outcomes Research Institute Engagement in Health Research Literature Explorer (PCORI Explorer) as a source of articles related to engagement in health research. The search includes articles from May 1995 to December 2017.
resultsWe identified 54 articles about frameworks for knowledge user engagement in health research and report on 15 concepts. The average number of concepts reported in the 54 articles is n = 7, and ranges from n = 1 to n = 13 concepts. The most commonly reported concepts are: knowledge user - prepare, support (n = 44), relational process (n = 39), research agenda (n = 38). The least commonly reported concepts are: methodology (n = 8), methods (n = 10) and analysis (n = 18). In a comparison of articles that report how research was done (n = 26) versus how research should be done (n = 28), articles about how research was done report concepts more often and have a higher average number of concepts (n = 8 of 15) in comparison to articles about how research should be done (n = 6 of 15). The exception is the concept "evaluate" and that is more often reported in articles that describe how research should be done.
conclusionsWe propose that research teams 1) consider engagement with the 15 concepts as fluid, and 2) consider a form of partnered negotiation that takes place through all phases of research to identify and use concepts appropriate to their team needs. There is a need for further work to understand concepts for knowledge user engagement.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.