ArticleJournal of the American Geriatrics Society2020
Race, Ethnicity, and Other Risks for Live Discharge Among Hospice Patients with Dementia.
Article in Journal of the American Geriatrics Society, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 22 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
22 citing papers in PubMed, 4 syntheses or guidelines pooled it, 35 citations in OpenAlex.
- Live Hospice Discharge of Individuals with Cognitive Disabilities: A Systematic Review.Journal of the American Medical Directors Association · 2025Pooled it
- Live Discharge of Hospice Patients with Alzheimer's Disease and Related Dementias: A Systematic Review.The American journal of hospice & palliative care · 2024Pooled it
- Hispanics and Hospice: A Systematic Literature Review.The American journal of hospice & palliative care · 2023Pooled it
- Hospice interventions for persons living with dementia, family members and clinicians: A systematic review.Journal of the American Geriatrics Society · 2022Pooled it
- Hospice Care in the Era of AI: Hospices' Views on Data-Driven Tools to Support Live Discharge Decisions.Journal of the American Geriatrics Society · 2026Article
- A Multidimensional Narrative Review of Disparities in Hospice Care Use.The American journal of hospice & palliative care · 2026Article
- Top Ten Tips Palliative Care Clinicians Should Know About Hospice Live Discharge.Journal of palliative medicine · 2025Article
- Developing and Testing a Two-Part Intervention: Enhancing Dementia Instruction and Tool in Home Hospice Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Racial Disparities in Low-Value Care in the Last Year of Life for Medicare Beneficiaries With Neurodegenerative Disease.Neurology. Clinical practice · 2024Article
- Mapping racial and ethnic healthcare disparities for persons living with dementia: A scoping review.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2024Article
- Factors associated with preventable hospitalizations after hospice live discharge among Medicare patients with Alzheimer's disease and related dementias.Journal of the American Geriatrics Society · 2023Article
- Hospice Quality, Race, and Disenrollment in Hospice Enrollees With Dementia.Journal of palliative medicine · 2023Article
- Healthcare Utilization and Mortality After Hospice Live Discharge Among Medicare Patients With and Without Alzheimer's Disease and Related Dementias.Journal of general internal medicine · 2023Article
- A national study of disenrollment from hospice among people with dementia.Journal of the American Geriatrics Society · 2022Observational
- Intensity of care in cancer patients in the last year of life: a retrospective data linkage study.British journal of cancer · 2022Article
- Hospice Improves Care Quality For Older Adults With Dementia In Their Last Month Of Life.Health affairs (Project Hope) · 2022Article
- Impact of Comorbid Dementia on Patterns of Hospice Use.Journal of palliative medicine · 2022Article
- Aliviado Mobile App for Hospice Providers: A Usability Study.Journal of pain and symptom management · 2022Article
- Disparities in Palliative and Hospice Care and Completion of Advance Care Planning and Directives Among Non-Hispanic Blacks: A Scoping Review of Recent Literature.The American journal of hospice & palliative care · 2021Article
- Disparities and Racism Experienced Among Older African Americans Nearing End of Life.Current geriatrics reports · 2021Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors at 3 institutions in 1 country.
Funding
Abstract
objectivesThe end-of-life trajectory for persons with dementia is often protracted and difficult to predict, placing these individuals at heightened risk of live discharge from hospice. Risks for live discharge due to condition stabilization or failure to decline among patients with dementia are not well established. Our aim was to identify demographic, health, and hospice service factors associated with live discharge due to condition stabilization or failure to decline among hospice patients with dementia.
designRetrospective cohort study.
settingA large not-for-profit agency in New York City.
participantsA total of 2629 hospice patients with dementia age 65 years and older. MEASUREMENTS: Primary outcome was live discharge from hospice due to condition stabilization or failure to decline (vs death). Measures include demographic factors (race/ethnicity, Medicaid, sex, age, marital status, parental status), health characteristics (primary dementia diagnosis, comorbidities, functional status, prior hospitalization), and hospice service (location, length of service, number and timing of nurse visits).
resultsLogistic regression models indicated that compared with white hospice patients with dementia, African American and Hispanic hospice patients with dementia experienced increased risk of live discharge (African American: adjusted odds ratio [aOR] = 2.42; 95% confidence interval [CI] = 1.34-4.38; Hispanic: aOR = 2.99; 95% CI = 1.81-4.94). Home hospice (aOR = 7.57; 95% CI = 4.04-14.18), longer length of service (aOR = 1.04; 95% CI = 1.04-1.05), and more days between nurse visits and discharge (aOR = 1.86; 95% CI = 1.56-2.21) were also associated with live discharge.
conclusionTo avoid burdensome and disruptive transitions out of hospice in patients with dementia, interventions to reduce live discharge due to condition stabilization or failure to decline should be tailored to meet the needs of African American, Hispanic, and home hospice patients. Policies regarding sustained hospice eligibility should account for the variable and protracted end-of-life trajectory of patients with dementia. J Am Geriatr Soc 68:551-558, 2020.
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Registered trials
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