Evidence map›Paper›PMID 31750840›Full record

ArticleJMIR pediatrics and parenting2019

Use of Synchronous Digital Health Technologies for the Care of Children With Special Health Care Needs and Their Families: Scoping Review.

Marissa Bird, Lin Li, Carley Ouellette, Kylie Hopkins, Michael H McGillion, Nancy Carter

Registry-linked trialAbstract readScoping Review
In one paragraph

Article in JMIR pediatrics and parenting, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06769334 (Digital Health Intervention to Improve Neurodevelopmental Outcomes for Young Childhood Cancer Survivors in Underserved Communities), which is not on this map. Cited by 26 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
26citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06769334 narecruitingnot on this mapstarted 2024, after this paper: background citation

Digital Health Intervention to Improve Neurodevelopmental Outcomes for Young Childhood Cancer Survivors in Underserved Communities

TypeinterventionalSponsorNationwide Children's HospitalRan2024 to 2027Enrolled105ConditionsChildhood CancerArmsPLAY Program
3 · Its place in the literature

Who cites it

26 citing papers in PubMed, 2 syntheses or guidelines pooled it.

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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Marissa BirdSchool of Nursing, McMaster University, Hamilton, ON, Canada.ORCID https://orcid.org/0000-0003-2188-0767
Lin Li *School of Nursing, McMaster University, Hamilton, ON, Canada.ORCID https://orcid.org/0000-0003-1822-4048
Carley Ouellette *School of Nursing, McMaster University, Hamilton, ON, Canada.ORCID https://orcid.org/0000-0003-3242-6164
Kylie Hopkins *McMaster Children's Hospital, Hamilton, ON, Canada.ORCID https://orcid.org/0000-0001-7270-3686
Michael H McGillion *School of Nursing, McMaster University, Hamilton, ON, Canada.ORCID https://orcid.org/0000-0002-1343-7012
Nancy Carter *School of Nursing, McMaster University, Hamilton, ON, Canada.ORCID https://orcid.org/0000-0002-4506-7167

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundUse of synchronous digital health technologies for care delivery to children with special health care needs (having a chronic physical, behavioral, developmental, or emotional condition in combination with high resource use) and their families at home has shown promise for improving outcomes and increasing access to care for this medically fragile and resource-intensive population. However, a comprehensive description of the various models of synchronous home digital health interventions does not exist, nor has the impact of such interventions been summarized to date.

objectiveWe aim to describe the various models of synchronous home digital health that have been used in pediatric populations with special health care needs, their outcomes, and implementation barriers.

methodsA systematic scoping review of the literature was conducted, guided by the Arksey and O'Malley Scoping Review Framework. MEDLINE, CINAHL, and EMBASE databases were searched from inception to June 2018, and the reference lists of the included systematic reviews and high-impact journals were hand-searched.

resultsA total of 38 articles were included in this review. Interventional articles are described as feasibility studies, studies that aim to provide direct care to children with special health care needs, and studies that aim to support family members to deliver care to children with special health care needs. End-user involvement in the design and implementation of studies is evaluated using a human-centered design framework, and factors affecting the implementation of digital health programs are discussed in relation to technological, human, and systems factors.

conclusionsThe use of digital health to care for children with special health care needs presents an opportunity to leverage the capacity of technology to connect patients and their families to much-needed care from expert health care providers while avoiding the expenses and potential harms of the hospital-based care system. Strategies to scale and spread pilot studies, such as involving end users in the co-design techniques, are needed to optimize digital health programs for children with special health care needs.

Indexed as

asthmachildren with special health care needsco-designcongenital heart diseasedigital healthpalliative carepediatricsscoping review

Identifiers

PMID31750840
PMCPMC6895870

What OpenQuestion holds

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Registered trials

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.