ArticleJournal of renal care2020
Persons' Experiences of Suffering from Nephrotic Syndrome.
Article in Journal of renal care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 5 papers.
What it found
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Who cites it
5 citing papers in PubMed.
- Development of the Nephrotic Syndrome Symptom and Impact Patient Reported Outcome (NephroSSI-PRO) measure for use in adults and adolescents with primary glomerulopathies.Journal of patient-reported outcomes · 2025Article
- Exploring the meaning of life among Chinese adolescents with nephrotic syndrome: determinants and psychological correlates.Frontiers in psychology · 2024Article
- Causes of nephrotic syndrome in Sweden: The relevance of clinical presentation and demographics.Frontiers in nephrology · 2023Article
- Effect of Chinese medicine prescription on nephrotic syndrome: A protocol for systematic review and meta-analysis.Medicine · 2020Article
- Persons' Experiences of Suffering from Nephrotic Syndrome.Journal of renal care · 2020Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundLittle is known about health and wellbeing among patients with nephrotic syndrome (NS), despite it being a serious condition in patients with renal failure. In order to promote health, it is important that both healthcare professionals and patients are aware of the signs and symptoms of the disease.
objectivesThe aim was to explore patients' experience of suffering from nephrotic syndrome.
designAn inductive, qualitative method.
participantsTen adult patients with either newly diagnosed or a relapse of NS treated in a University hospital, south of Sweden from February 2016 to February 2019. MEASUREMENTS: Data were collected using open-ended interviews and analysed by means of Lindseth and Norberg's phenomenological-hermeneutical method.
resultsSuffering from NS meant being a stranger in an unfamiliar world of symptoms, signs and medical treatment without professional guidance or piloting, illustrated by four themes: Feeling ill and well at the same time, Being passively adherent, Being in uncertainty, and Trying to comprehend and cope. IMPLICATIONS FOR PRACTICE: The result provides an in-depth understanding of the illness experience among patients with NS and constitutes a foundation for clinical guidelines on treatment, follow-up and health promotion.
conclusionPatients with NS end up in a state of ambiguity due to a profound knowledge deficit that causes uncertainty and a lack of self-management. The experienced lack of professional self-management support is partly compensated for by social support from relatives, enabling those with NS to manage everyday life in a reasonable way.
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