ArticleBMC geriatrics2019
Community resource referral needs among African American dementia caregivers in an urban community: a qualitative study.
Article in BMC geriatrics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 3 of them syntheses that pooled it.
What it found
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Who cites it
17 citing papers in PubMed, 3 syntheses or guidelines pooled it.
- Caregiver-reported barriers and facilitators to hospice enrollment for persons with dementia: A systematic review of qualitative evidence.Palliative medicine · 2025Pooled it
- Conceptualizing Family Caregivers' Use of Community Support Services: A Scoping Review.The Gerontologist · 2024Pooled it
- Health Care-Related Tasks of Informal Dementia Caregivers in the U.S.: A Systematic Review with Narrative Synthesis.Inquiry : a journal of medical care organization, provision and financingPooled it
- Understanding the implementation process of the Adult Day Services Plus program.BMC geriatrics · 2025Trial
- Caregivers' Views of a Pediatric Inpatient Intervention to Address Health-Related Social Risks.Hospital pediatrics · 2025Trial
- Stroke Caregiver Needs in a Population-Based Study.Journal of the American Heart Association · 2025Article
- Telephone-based mindfulness intervention positively impacts family communication and stress within rural, African American dementia caregiving teams.Aging & mental health · 2025Article
- Policy and Organizational Factors that Affect the Utilization of Health Services for Alzheimer's Disease Among the Latino Community - The Primary Care Provider Perspective.Journal of the National Hispanic Medical Association · 2025Article
- Intersectionality in Alzheimer's Disease: The Role of Female Sex and Black American Race in the Development and Prevalence of Alzheimer's Disease.Neurotherapeutics : the journal of the American Society for Experimental NeuroTherapeutics · 2023Review
- "Falling between the cracks": Experiences of Black dementia caregivers navigating U.S. health systems.Journal of the American Geriatrics Society · 2022Article
- CommunityRx: Optimizing a Community Resource Referral Intervention for Minority Dementia Caregivers.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2022Article
- Examination of social determinants of health among patients with limited English proficiency.BMC research notes · 2021Article
- Racial Differences in Alzheimer's Disease Specialist Encounters Are Associated with Usage of Molecular Imaging and Dementia Medications: An Enterprise-Wide Analysis Using i2b2.Journal of Alzheimer's disease : JAD · 2021Article
- Everyday functioning as a predictor of cognitive status in a group of community-dwelling, predominantly Black adults.Alzheimer's & dementia (Amsterdam, Netherlands)Article
- The Alter Program: A Nurse-Led, Dementia-Friendly Program for African American Faith Communities and Families Living With Dementia.Nursing administration quarterlyArticle
- The Faith Care Family Project: A Pilot Intervention for African American Dementia Family Caregivers.American journal of Alzheimer's disease and other dementiasArticle
- Disparities in Physical and Psychological Symptoms in Hospitalized African American and White Persons with Dementia.Journal of aging and healthArticle
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
backgroundAfrican American caregivers of community-residing persons with dementia are mostly unpaid and have high rates of unmet basic and health needs. The National Alzheimer's Project Act (NAPA) mandates improved coordination of care for persons with dementia and calls for special attention to racial populations at higher risk for Alzheimer's Disease or related dementias (ADRD) to decrease health disparities. The purpose of this study is to describe the perceptions of African American caregivers of people with dementia about community resources needed to support caregiving as well as their own self-care.
methodsUsing a qualitative study design, in-depth, semi-structured qualitative interviews were conducted with caregivers (N = 13) at an urban geriatric clinic to elicit community resource needs, barriers to and facilitators of resource use and how to optimize clinical referrals to community resources. Caregivers were shown a community resource referral list ("HealtheRx") developed for people with dementia and were queried to elicit relevance, gaps and insights to inform delivery of this information in the healthcare setting. Data were iteratively coded and analyzed using directed content analysis. Results represent key themes.
resultsMost caregivers were women (n = 10, 77%) and offspring (n = 8, 62%) of the person with dementia. Community resource needs of these caregivers included social, entertainment, personal self-care and hospice services. Main barriers to resource use were the inability to leave the person with dementia unsupervised and the care recipient's disinterest in participating in their own self-care. Facilitators of resource use included shared caregiving responsibility and learning about resources from trusted sources. To optimize clinical referrals to resources, caregivers wanted specific eligibility criteria and an indicator of dementia care capability.
conclusionsAfrican American caregivers in this study identified ways in which community resource referrals by clinicians can be improved to meet their caregiving and self-care needs.
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