Evidence map›Paper›PMID 31722982›Full record

ArticleBMJ supportive & palliative care2021

Hospice at Home services in England: a national survey.

Melanie Rees-Roberts, Peter Williams, Ferhana Hashem, Charlotte Brigden, Kay Greene, Heather Gage, Mary Goodwin, Graham Silsbury, Bee Wee, Stephen Barclay and 2 more

Abstract read
In one paragraph

Article in BMJ supportive & palliative care, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Melanie Rees-RobertsCentre for Health Services Studies, University of Kent, Canterbury, UK m.rees-roberts@kent.ac.uk.ORCID http://orcid.org/0000-0002-7121-0414
Peter WilliamsDepartment of Mathematics, University of Surrey, Guildford, UK.
Ferhana HashemCentre for Health Services Studies, University of Kent, Canterbury, UK.
Charlotte BrigdenCentre for Health Services Studies, University of Kent, Canterbury, UK.
Kay GreeneResearch Lead, National Association for Hospice at Home, Fareham, UK.
Heather GageSurrey Health Economics Centre, University of Surrey, Guildford, UK.
Mary GoodwinCentre for Health Services Studies, University of Kent, Canterbury, UK.
Graham SilsburyCentre for Health Services Studies, University of Kent, Canterbury, UK.
Bee WeePalliative Medicine, Oxford University Hospitals NHS Trust, Oxford, UK.
Stephen BarclayDepartment of Public Health and Primary Care, University of Cambridge, Cambridge, UK.ORCID http://orcid.org/0000-0002-4505-7743
Patricia M WilsonCentre for Health Services Studies, University of Kent, Canterbury, UK.
Claire ButlerCentre for Health Services Studies, University of Kent, Canterbury, UK.

Funding

Department of Health HS&DR/14/197/44
6 · The paper itself

Abstract

objectiveHospice at Home (HAH) services aim to enable patients to be cared for and die at home, if that is their choice and achieve a 'good death'. A national survey, in 2017, aimed to describe and compare the features of HAH services and understand key enablers to service provision.

methodsService managers of adult HAH services in the 'Hospice UK' and National Association for Hospice at Home directories within England were invited to participate. Information on service configuration, referral, staffing, finance, care provision and enablers to service provision were collected by telephone interview.

resultsOf 128 services invited, 70 (54.7%) provided data. Great diversity was found. Most services operated in mixed urban/rural (74.3%) and mixed deprivation (77.1%) areas and provided hands-on care (97.1%), symptom assessment and management (91.4%), psychosocial support (94.3%) and respite care (74.3%). Rapid response (within 4 hours) was available in 65.7%; hands-on care 24 hours a day in 52.2%. Charity donations were the main source of funding for 71.2%. Key enablers for service provision included working with local services (eg, district nursing, general practitioner services), integrated health records, funding and anticipatory care planning. Access to timely medication and equipment was critical.

conclusionThere is considerable variation in HAH services in England. Due to this variation it was not possible to categorise services into delivery types. Services work to supplement local care using a flexible approach benefitting from integration and funding. Further work defining service features related to patient and/or carer outcomes would support future service development.

Indexed as

Home Care ServicesHospice CareHospicesAdultCaregiversEnglandHumansEnd of lifehospicehospice at homepalliative careservices

Identifiers

PMID31722982
PMCPMC8606452

What OpenQuestion holds

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LicenceCC BY
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.