Evidence map›Paper›PMID 31722623›Full record

ArticleMedical decision making : an international journal of the Society for Medical Decision Making2019

Using an Online, Modified Delphi Approach to Engage Patients and Caregivers in Determining the Patient-Centeredness of Duchenne Muscular Dystrophy Care Considerations.

Dmitry Khodyakov, Sean Grant, Brian Denger, Kathi Kinnett, Ann Martin, Marika Booth, Courtney Armstrong, Emily Dao, Christine Chen, Ian Coulter and 3 more

Open access · bronzeAbstract read
In one paragraph

Article in Medical decision making : an international journal of the Society for Medical Decision Making, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed
11.2field-weighted citation impact, top 2% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

21 citing papers in PubMed, 41 citations in OpenAlex.

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  12. Mapping the role of patient and public involvement during the different stages of healthcare innovation: A scoping review.Health expectations : an international journal of public participation in health care and health policy · 2022
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors at 5 institutions in 2 countries.

Dmitry KhodyakovRAND Health Care, Santa Monica, CA, USA.ORCID 0000-0002-2818-6906
Sean GrantRAND Health Care, Santa Monica, CA, USA.
Brian DengerParent Project Muscular Dystrophy, Hackensack, NJ, USA.
Kathi KinnettParent Project Muscular Dystrophy, Hackensack, NJ, USA.
Ann MartinParent Project Muscular Dystrophy, Hackensack, NJ, USA.
Marika BoothRAND Health Care, Santa Monica, CA, USA.
Courtney ArmstrongRAND Health Care, Santa Monica, CA, USA.
Emily DaoRAND, Santa Monica, CA, USA.
Christine ChenRAND, Santa Monica, CA, USA.
Ian CoulterRAND Health Care, Santa Monica, CA, USA.
Holly PeayRTI International, Research Triangle Park, NC, USA.
Glen HazlewoodDepartment of Medicine, Cumming School of Medicine, University of Calgary, Calgary, AB, Canada.
Natalie StreetCenters for Disease Control and Prevention, National Center on Birth Defects and Developmental Disabilities, Atlanta, GA, USA.
RAND Corporation · USParent Project Muscular Dystrophy · USCenters for Disease Control and Prevention · USRTI International · USUniversity of Calgary · CA

Funding

Intramural CDC HHS CC999999
6 · The paper itself

Abstract

PubMed holds no abstract for this paper.

Indexed as

Body HeightBody WeightBone and BonesCaregiversDelphi TechniqueFemaleGuidelines as TopicHumansInternetMaleMuscular Dystrophy, DuchennePatient-Centered CarePatientsPubertyRandom Allocationclinical practice guidelinesDuchenne muscular dystrophyDuchenne muscular dystrophy (DMD) care considerationsonline modified delphipatient engagementRAND/PPMD Patient-Centeredness Method (RPM), recombinant human growth hormone (rhGH)

Identifiers

PMID31722623
PMCPMC6900571
OpenAlexW2984574415

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.