ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2020
Cancer survivors' challenges with ostomy appliances and self-management: a qualitative analysis.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT02974634 (Ostomy Telehealth For Cancer Survivors), which is not on this map. Cited by 15 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Ostomy Telehealth For Cancer Survivors
Who cites it
15 citing papers in PubMed.
- Recruitment strategies for a multisite telehealth trial for rural cancer survivors with ostomies.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Trial
- An Ostomy Self-management Telehealth Intervention for Cancer Survivors: Technology-Related Findings From a Randomized Controlled Trial.Journal of medical Internet research · 2021Trial
- Product Management Experiences of Patients With a Stoma Receiving Telenursing Services.Nursing open · 2026Article
- Perioperative Ostomy Care and Education Experiences by Patient and Caregiver Health Literacy.The Journal of surgical research · 2026Article
- Validity and Reliability of the Stoma Self-Efficacy Scale in Patients With Intestinal Stoma: A Descriptive, Cross-Sectional and Validation Study.Journal of clinical nursing · 2026Article
- Self-Care Experiences of Patients Who Have Recently Undergone Colostomy: A Qualitative Study.Nursing open · 2025Article
- Defining Opportunities to Improve Perioperative Ostomy Care and Education.Annals of surgery open : perspectives of surgical history, education, and clinical approaches · 2025Article
- Impact of Ahmadi Continuing Nursing Model on self-care ability, stoma complications and quality of life of colostomy patients.BMC gastroenterology · 2024Article
- Self-care concept for people with elimination ostomy: a scoping review.Revista da Escola de Enfermagem da U S P · 2024Article
- Factors associated with leakage in patients with an ostomy: A cross-sectional study.Nursing open · 2023Article
- Life with a stoma across five European countries-a cross-sectional study on long-term rectal cancer survivors.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- Stakeholder engagement and participation in the design, delivery, and dissemination of the ostomy self-management telehealth (OSMT) program.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- "Living with a Stoma": Exploring the Lived Experience of Patients with Permanent Colostomy.International journal of environmental research and public health · 2021Article
- 'Because Everybody is so Different': a qualitative analysis of the lived experiences and information needs of rectal cancer survivors.BMJ open · 2021Article
- Article
Corrections and comments
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Authors and funding
6 authors.
Funding
Abstract
purposeAn ostomy poses significant health-related quality of life (HRQOL) issues for cancer survivors. Survivors must learn to manage pouching appliances and adjust to the psychosocial consequences of living with an ostomy. We explored, through qualitative analysis, the challenges with self-management and ostomy appliances reported by cancer survivors.
methodsPooled data from two studies with a question on the greatest challenge of living with an ostomy and intervention session notes were analyzed using content analysis approach. The themes were reviewed and agreed upon by the research team, and counts were tallied for each theme based on the number of times they were mentioned by participants.
resultsOf the 928 greatest challenge responses and session notes, a total of 106 mentions (11%) were focused on ostomy appliances, associated repercussions, and time taken for ostomy care. Eight themes emerged: bleeding, pain, leakage, skin problems/irritation/rash, wafer-related issues, materials getting under the wafer, time to care for ostomy, and solutions to clean the stoma. Challenges described included poor wafer adherence, allergic reactions to adhesives, and pain around the stoma site. These challenges resulted in anxiety related to leakage, odor, and/or skin irritation, which negatively impacted on participation in social activities and self-confidence with ostomy care.
conclusionsCancer survivors living with an ostomy experience multiple obstacles with ostomy appliances and caring for their ostomy. Continued innovation in ostomy appliance design and technology is needed to help cancer survivors with successfully managing ostomy care.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.