ArticleAlzheimer's & dementia (New York, N. Y.)2019
Use and costs of services and unpaid care for people with mild-to-moderate dementia: Baseline results from the IDEAL cohort study.
Article in Alzheimer's & dementia (New York, N. Y.), 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 17 papers, 2 of them syntheses that pooled it.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
17 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Healthcare Service Utilisation of People Living With Non-Alzheimer's Dementia: A Systematic Review.Journal of geriatric psychiatry and neurology · 2026Pooled it
- The Costs of Dementia in Europe: An Updated Review and Meta-analysis.PharmacoEconomics · 2023Pooled it
- Social and Health Conditions That Drive the Need and Demand for, Use of and Expenditure on Social Care in the UK: A Systematic Review.Cochrane evidence synthesis and methods · 2026Review
- Living alone with dementia is a neglected source of inequality: findings from a scoping review of research evidence.Systematic reviews · 2025Article
- Global Societal Burden of Alzheimer's Disease by Severity: a Targeted Literature Review.Neurology and therapy · 2025Review
- Cost Utility of Specialist Physiotherapy for Functional Motor Disorder (Physio4FMD): Economic Analysis of a Pragmatic Randomized Controlled Trial.Neurology. Clinical practice · 2025Article
- Article
- The high cost of care and limited evidence on cost-effective strategies for Lewy body dementia: systematic review of evidence.BJPsych open · 2024Review
- Long-term impact of the COVID-19 pandemic on the quality of life of people with dementia and their family carers.Age and ageing · 2024Article
- Resilience in caregivers of people with mild-to-moderate dementia: findings from the IDEAL cohort.BMC geriatrics · 2023Article
- Association between handgrip strength asymmetry and cognitive function across ethnicity in rural China: a cross-sectional study.Frontiers in aging neuroscience · 2023Article
- Computational Studies Applied to Linalool and Citronellal Derivatives Against Alzheimer's and Parkinson's Disorders: A Review with Experimental Approach.Current neuropharmacology · 2023Review
- The Humanistic and Economic Burden of Alzheimer's Disease.Neurology and therapy · 2022Review
- Handgrip strength asymmetry is associated with the risk of neurodegenerative disorders among Chinese older adults.Journal of cachexia, sarcopenia and muscle · 2022Article
- Limited receipt of support services among people with mild-to-moderate dementia: Findings from the IDEAL cohort.International journal of geriatric psychiatry · 2022Article
- Use of Services by People Living Alone With Cognitive Impairment: A Systematic Review.Innovation in aging · 2021Review
- Prevalence of Alzheimer's Disease and Parkinson's Disease in China: An Updated Systematical Analysis.Frontiers in aging neuroscience · 2020Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
18 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
introductionWe examined 3-month service use and costs of care for people with mild-to-moderate dementia in Great Britain.
methodsWe analyzed Improving the experience of Dementia and Enhancing Active Life cohort study baseline data on paid care, out-of-pocket expenditure, and unpaid care from participants with dementia (N = 1547) and their carers (N = 1283). In regression analyses, we estimated per-group mean costs of diagnostic and sociodemographic subgroups.
resultsUse of services apart from primary and outpatient hospital care was low. Unpaid care accounted for three-quarters of total costs (mean, £4008 [standard error, £130] per participant). Most participants (87%) received unpaid care equating to 36 hours weekly. Estimated costs for people with Parkinson's dementia were £8609, £4359 for participants with mixed dementia, and £3484 for those with Alzheimer's disease. Total costs were lower for participants with dementia living alone than living with others (£2484 vs. £4360); costs were lower for female than for male participants (£3607 vs. £4272). DISCUSSION: Costs varied by dementia subtype, carer status, and living arrangement. Policy makers should recognize the high costs of unpaid care for people with dementia, who do not always get the support that they need or would like to receive.
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