Evidence map›Paper›PMID 31709771›Full record

SynthesisArthritis care & research2019

2019 American College of Rheumatology Recommended Patient-Reported Functional Status Assessment Measures in Rheumatoid Arthritis.

Claire E H Barber, JoAnn Zell, Jinoos Yazdany, Aileen M Davis, Laura Cappelli, Linda Ehrlich-Jones, Donna Everix, J Carter Thorne, Victoria Bohm, Lisa Suter and 2 more

Abstract readSystematic Review
In one paragraph

Synthesis in Arthritis care & research, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 25 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
25citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

25 citing papers in PubMed, 2 syntheses or guidelines pooled it.

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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

12 authors.

Claire E H BarberUniversity of Calgary, Calgary, Alberta, Canada.ORCID 0000-0002-3062-5488
JoAnn ZellDenver Health, Denver, Colorado.
Jinoos YazdanyUniversity of California, San Francisco.
Aileen M DavisKrembil Research Institute, University Health Network, and University of Toronto, Toronto, Ontario, Canada.
Laura CappelliJohns Hopkins University, Baltimore, Maryland.
Linda Ehrlich-JonesShirley Ryan AbilityLab, Chicago, Illinois.
Donna EverixMills Peninsula Health Services, Burlingame, California, and OnMyCare Home Health, Fremont, California.
J Carter ThorneUniversity of Toronto, Toronto, Ontario, Canada.
Victoria BohmUniversity of Calgary, Calgary, Alberta, Canada.
Lisa SuterYale University, New Haven, Connecticut, and Veterans Affairs Medical Center, West Haven, Connecticut.
Alex LimanniArthritis Centers of Texas, Dallas.
Kaleb MichaudUniversity of Nebraska Medical Center, Omaha, and FORWARD, the National Databank for Rheumatic Diseases, Wichita, Kansas.ORCID 0000-0002-5350-3934

Funding

RESOURCE-BASED CENTER FOR THE ADVANCEMENT OF PRECISION MEDICINE IN RHEUMATOLOGYP30AR070155 · NIAMS · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Mary C Nakamura · 2016 to 2026
$8.2M
Supplement for Community Translation of the South Asian Healthy Lifestyle Intervention (SAHELI)R01HL132978 · NHLBI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI KANDULA, NAMRATHA R · 2017 to 2022
$3.6M
Lupus Intervention Fatigue Trial (LIFT)R01AR071091 · NIAMS · NORTHWESTERN UNIVERSITY AT CHICAGO · PI EHRLICH-JONES, LINDA S., RAMSEY-GOLDMAN, ROSALIND · 2018 to 2022
$3.0M
Advancing Quality and Outcomes Measurement in RheumatologyK24AR074534 · NIAMS · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Jinoos Yazdany · 2019 to 2026
$1.5M
Rheumatology Informatics System for Effectiveness Patient-Reported Outcome (RISE-PRO) Dissemination ProjectR18HS025638 · AHRQ · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI YAZDANY, JINOOS · 2018 to 2020
$1.5M
Motivational Interviewing and Physical Activity Behavior Change in ArthritisK23NR012225 · NINR · REHABILITATION INSTITUTE OF CHICAGO D/B/A SHIRLEY RYAN ABILITYLAB · PI EHRLICH-JONES, LINDA S. · 2010 to 2012
$344k
AHRQ HHS R18 HS025638American College of RheumatologyBloomberg PhilanthropiesCIHRCraig H. Neilsen FoundationJerome Greene FoundationMount SinaiNational Institute on Disability, Independent Living, and Rehabilitation ResearchNHLBI NIH HHS 1R01-HL132978-01A1NIAMS NIH HHS 5R01-AR071091NIAMS NIH HHS K24 AR074534NIAMS NIH HHS P30 AR070155NINR NIH HHS K23 NR012225Rheumatology Research FoundationUniversity Health NetworkUniversity of Calgary Department of MedicineVAYale New Haven Health System Center for Outcomes Research & Evaluation
6 · The paper itself

Abstract

objectiveTo develop American College of Rheumatology (ACR) recommendations for patient-reported Functional Status Assessment Measures (FSAMs) for use in routine clinical practice in patients with rheumatoid arthritis (RA).

methodsWe convened a workgroup to conduct a systematic review of published literature through March 16, 2017 and abstract FSAM properties. Based upon initial search results and clinical input, we focused on the following FSAMs appropriate for routine clinical use: the Health Assessment Questionnaire (HAQ) and derived measures and the Patient-Reported Outcomes Measurement Information System (PROMIS) tool. We used the Consensus-Based Standards for the Selection of Health Measurement Instruments (COSMIN) 4-point scoring method to evaluate each FSAM, allowing for overall level of evidence assessment. We identified FSAMs fulfilling a predefined minimum standard and, through a modified Delphi process, selected preferred FSAMs for regular use in most clinic settings.

resultsThe search identified 11,835 articles, of which 56 were included in the review. Descriptions of the measures, properties, study quality, level of evidence, and feasibility were abstracted and scored. Following a modified Delphi process, 7 measures fulfilled the minimum standard for regular use in most clinic settings, and 3 measures were recommended: the PROMIS physical function 10-item short form (PROMIS PF10a), the HAQ-II, and the Multidimensional HAQ.

conclusionThis work establishes ACR recommendations for preferred RA FSAMs for regular use in most clinic settings. These results will inform clinical practice and can support future ACR quality measure development as well as highlight ongoing research needs.

Indexed as

Health Status IndicatorsPatient Reported Outcome MeasuresSocieties, MedicalArthritis, RheumatoidHumansMotor ActivityPractice Guidelines as TopicRheumatologySeverity of Illness IndexSurveys and QuestionnairesUnited States

Identifiers

PMID31709771
PMCPMC6884654

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.