ArticleThe American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry2020
Self-Reports and Caregivers' Proxy Reports of Unmet Needs of Persons With Dementia: Implications for Both Partners' Health-Related Quality of Life.
Article in The American journal of geriatric psychiatry : official journal of the American Association for Geriatric Psychiatry, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
10 citing papers in PubMed.
- Healthcare Needs Patterns and Pattern-Predicting Factors in Dementia: Results of the Comprehensive, Computerized Unmet Needs Assessment from the Randomized, Controlled Interventional Trial InDePendent.Journal of Alzheimer's disease : JAD · 2024Trial
- Unmet social needs of community-living older adults with dementia: A scoping review.Journal of Alzheimer's disease : JAD · 2026Article
- Spousal Discrepancies in Perceived Needs of People Living with Alzheimer's Disease: A Mixed-Methods Study of Caregivers' Perspective Taking and Dyadic Communication.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Internet Access and Use Among Dementia Carers and the People They Support in Australia: Cross-Sectional Survey.JMIR formative research · 2025Article
- Challenges and Recommendations for Proxy Reporting in Aging Research: A Brief Commentary.Cureus · 2024Review
- Self-perceived care needs and quality of life in people with cognitive impairment during routine care at home: cross-sectional results of the interventional study.BMC geriatrics · 2023Article
- 6G and Artificial Intelligence Technologies for Dementia Care: Literature Review and Practical Analysis.Journal of medical Internet research · 2022Review
- The Remote Assessment and Dynamic Response Program: Development of an In-Home Dementia-Related Care Needs Assessment to Improve Well-Being.Innovation in aging · 2022Article
- Person-centered assessment of apathy and resistance to care in people living with dementia: Review of existing measures.Alzheimer's & dementia (New York, N. Y.) · 2022Article
- Persons with dementia and informal caregivers prioritizing care: A mixed-methods study.Alzheimer's & dementia (New York, N. Y.) · 2021Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
objectiveThis study examined in a large sample of dementia caregiving dyads the associations between both partners' reports of unmet needs in persons with dementia (PwDs) and both partners' health-related quality of life (HRQOL).
methodsThis was a cross-sectional self-report survey of 521 community-dwelling dyads in a pragmatic trial in the Netherlands. The Camberwell Needs Assessment was used to measure PwDs' unmet needs. Both partners' self-reported their HRQOL using the EuroQol-5.
resultsControlling for covariates, PwDs' self-reported greater unmet needs were significantly associated with PwDs' and caregivers' lower self-reported HRQOL (actor effect; b = -0.044, β = -0.226, z = -3.588, p <0.001 and partner effect; b = -0.021, β = -0.131, z = -2.154, p = 0.031). Caregivers' proxy reports were greater than PwDs' self-reported unmet needs (Δ=0.66,χ
conclusionClinicians should use caution in relying on caregiver proxy reports of PwDs' needs and HQOL alone regarding healthcare decision making.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.