Evidence map›Paper›PMID 31706355›Full record

ArticleBMC palliative care2019

Spiritual care at the end of life in the primary care setting: experiences from spiritual caregivers - a mixed methods study.

Ian Koper, H Roeline W Pasman, Bart P M Schweitzer, Annemieke Kuin, Bregje D Onwuteaka-Philipsen

Open access · goldAbstract read
In one paragraph

Article in BMC palliative care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
21citing papers in PubMed, 1 pooled it
4.8field-weighted citation impact, top 5% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

21 citing papers in PubMed, 1 synthesis or guideline pooled it, 63 citations in OpenAlex.

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  7. The Involvement of Caregivers in the End-of-life Care of an Older Adult Living in a Long-term Care Home: A Qualitative Case Study with Nurses and Relatives.The Canadian journal of nursing research = Revue canadienne de recherche en sciences infirmieres · 2024
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors at 3 institutions in 1 country.

Ian KoperDepartment of Public and Occupational Health, Amsterdam UMC, Vrije Universiteit AmsterdamAmsterdam Public Health research institute, Amsterdam, The Netherlands. i.koper@amsterdamumc.nl.ORCID http://orcid.org/0000-0001-6593-4822
H Roeline W PasmanDepartment of Public and Occupational Health, Amsterdam UMC, Vrije Universiteit AmsterdamAmsterdam Public Health research institute, Amsterdam, The Netherlands.
Bart P M SchweitzerDepartment of Public and Occupational Health, Amsterdam UMC, Vrije Universiteit AmsterdamAmsterdam Public Health research institute, Amsterdam, The Netherlands.
Annemieke KuinSpiritual caregiver, Dijklander Hospital, Hoorn and Purmerend, The Netherlands.
Bregje D Onwuteaka-PhilipsenDepartment of Public and Occupational Health, Amsterdam UMC, Vrije Universiteit AmsterdamAmsterdam Public Health research institute, Amsterdam, The Netherlands.
Vrije Universiteit Amsterdam · NLHealth & Safety in Sports · NLWaterlandziekenhuis · NL

Funding

ZonMw 844001102
6 · The paper itself

Abstract

backgroundSpiritual care is an important aspect of palliative care. In the Netherlands, general practitioners and district nurses play a leading role in palliative care in the primary care setting. When they are unable to provide adequate spiritual care to their patient, they can refer to spiritual caregivers. This study aimed to provide an overview of the practice of spiritual caregivers in the primary care setting, and to investigate, from their own perspective, the reasons why spiritual caregivers are infrequently involved in palliative care and what is needed to improve this.

methodSequential mixed methods consisting of an online questionnaire with structured and open questions completed by 31 spiritual caregivers, followed by an online focus group with 9 spiritual caregivers, analysed through open coding.

resultsSpiritual caregivers provide care for existential, relational and religious issues, and the emotions related to these issues. Aspects of spiritual care in practice include helping patients find meaning, acceptance or reconciliation, paying attention to the spiritual issues of relatives of the patient, and helping them all to say farewell. Besides spiritual issues, spiritual caregivers also discuss topics related to medical care with patients and relatives, such as treatment wishes and options. Spiritual caregivers also mentioned barriers and facilitators for the provision of spiritual care, such as communication with other healthcare providers, having a relationship of trust and structural funding.. In the online focus group, local multidisciplinary meetings were suggested as ideal opportunities to familiarize other healthcare providers with spirituality and promote spiritual caregivers' services. Also, structural funding for spiritual caregivers in the primary care setting should be organized.

conclusionSpiritual caregivers provide broad spiritual care at the end of life, and discuss many different topics beside spiritual issues with patients in the palliative phase, supporting them when making medical end-of-life decisions. Spiritual care in the primary care setting may be improved by better cooperation between spiritual caregiver and other healthcare providers, through improved education in spiritual care and better promotion of spiritual caregivers' services.

Indexed as

Religious PersonnelSpiritualityAdultAgedCaregiversFemaleHumansMaleMiddle AgedNetherlandsPalliative CarePrimary Health CareTerminal CarePalliative carePrimary careQuality of careSpiritual care

Identifiers

PMID31706355
PMCPMC6842508
OpenAlexW2984777198

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.