ArticlePediatric cardiology2020
Parents of Very Young Children with Congenital Heart Defects Report Good Quality of Life for Their Children and Families Regardless of Defect Severity.
Article in Pediatric cardiology, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers, 3 of them syntheses that pooled it.
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Who cites it
12 citing papers in PubMed, 3 syntheses or guidelines pooled it, 20 citations in OpenAlex.
- Health-related quality of life and influencing factors in parents of children with congenital heart disease: a systematic review and meta-analysis.Frontiers in public health · 2025Pooled it
- Systematic Review of Instruments Assessing Psychosocial Adaptation and Outcomes Among Families of Children With Congenital Heart Disease.Journal of pediatric psychology · 2023Pooled it
- Social determinants of health and outcomes for children and adults with congenital heart disease: a systematic review.Pediatric research · 2021Pooled it
- The Effect of an Educational Application on The Quality of Life and Treatment Adherence in Mothers of Children with Congenital Heart Disease Undergoing Cardiac Surgery: A Randomized Clinical Trial.International journal of community based nursing and midwifery · 2025Trial
- Health-Related Quality of Life and Internalising Symptoms in Romanian Children with Congenital Cardiac Malformations: A Single-Centre Cross-Sectional Analysis.Healthcare (Basel, Switzerland) · 2025Article
- Wellbeing and quality of life among parents of individuals with Fontan physiology.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2025Article
- Stress and Coping Factors Affecting Health-Related Quality of Life in Parents of Children with Congenital Heart Disease: An Integrative Review.Pediatric cardiology · 2024Review
- Participants' Bias in Disability Research on Family Quality of Life during the 0-6 Years Stage.Behavioral sciences (Basel, Switzerland) · 2023Review
- Postoperative health-related quality of life in children with congenital heart disease: a short-term follow-up study.Journal of cardiothoracic surgery · 2023Article
- Factors Affecting Psychological and Health-Related Quality-of-Life Status in Children and Adolescents with Congenital Heart Diseases.Children (Basel, Switzerland) · 2022Article
- Health-related quality of life in children with congenital heart disease following interventional closure versus minimally invasive closure.Frontiers in cardiovascular medicine · 2022Article
- Sense of coherence and quality of life in adolescents with heart disease.Revista paulista de pediatria : orgao oficial da Sociedade de Pediatria de Sao Paulo · 2022Article
Corrections and comments
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Authors and funding
11 authors at 4 institutions in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
The purpose of this study was to investigate parent reports of quality of life for their very young children with congenital heart defects (CHD) and to compare their scores to previously published data. Parents of children 1-3 years old with CHD or innocent heart murmurs completed the Pediatric Quality of Life Inventory (PedsQL) core, cardiac, and family impact modules. Multivariable regression analyses assessed the impact of age, sex, family income, and CHD treatment history (study group) on PedsQL scores. Correlations between family impact and core/cardiac modules were examined. PedsQL scores were compared to healthy norms. 140 parents of young children participated within four study groups: CHD no treatment (n = 44), CHD treatment without bypass (n = 26), CHD treatment with bypass (n = 42) ,and innocent heart murmurs (n = 28). Male sex was associated with higher core (F = 4.16, p = 0.04, σ
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.