Evidence map›Paper›PMID 31700689›Full record

ArticleSpinal cord series and cases2019

The International Spinal Cord Injury Pediatric Activity and Participation Basic Data Set.

Miriam Hwang, Marika Augutis, Cristina Sadowsky, Wiebke Höfers, Lawrence C Vogel, Marcel Post, Susan Charlifue, Peter Wayne New, Rhona Fisher, Joan Carney and 2 more

Abstract read
In one paragraph

Article in Spinal cord series and cases, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Prognosis of traumatic spinal cord injury in children: Follow-up of 86 patients.Chinese journal of traumatology = Zhonghua chuang shang za zhi · 2023
    Article
  2. Article
  3. Article
  4. A Primary Care Provider's Guide to Pediatric Spinal Cord Injuries.Topics in spinal cord injury rehabilitation · 2020
    Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Miriam Hwang1Research Department, Shriners Hospitals for Children, Chicago, IL USA.
Marika Augutis2Department of Neurobiology, Core Sciences and Society, Karolinska Institute, Stockholm, Sweden.
Cristina SadowskyRehabilitation Department, Kennedy Krieger Rehabilitation Institute, Baltimore, MD USA.ORCID 0000-0003-4028-7301
Wiebke Höfers4Physiotherapy Department, Sunnaas Hospital, Akershus, Norway.
Lawrence C Vogel1Research Department, Shriners Hospitals for Children, Chicago, IL USA.
Marcel Post5Center of Excellence for Rehabilitation Medicine, Brain Center Rudolf Magnus, University Utrecht and De Hoogstraat Rehabilitation, Utrecht, Netherlands.ORCID 0000-0002-2205-9404
Susan Charlifue6Research Department, Craig Hospital, Englewood, CO USA.
Peter Wayne New7Spinal Rehabilitation Service, Caulfield Hospital, Melbourne, VIC Australia.ORCID 0000-0002-5669-3286
Rhona FisherFisher Association, Baltimore, MD USA.
Joan CarneyRehabilitation Department, Kennedy Krieger Rehabilitation Institute, Baltimore, MD USA.
Kathryn DentDepartment of Occupational Therapy, Center for Outcomes and Measurement, Jefferson College of Rehabilitation Sciences, Jefferson (Philadelphia University+Thomas Jefferson University), Philadelphia, PA USA.
M J MulcaheyDepartment of Occupational Therapy, Center for Outcomes and Measurement, Jefferson College of Rehabilitation Sciences, Jefferson (Philadelphia University+Thomas Jefferson University), Philadelphia, PA USA.ORCID 0000-0002-0837-714X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Study design: International focus groups. Objectives: The objective of this project was to develop the International Spinal Cord Injury (SCI) Pediatric Activity and Participation (A&P) Basic Data Set. Methods: A focus group of experts in pediatric and adult SCI, and contributors of the existing adult International SCI Adult A&P Basic Data Set convened to develop an initial draft of the data set, which was iteratively refined over a 12 month period based on relevant literature and existing outcome measures that evaluate pediatric activity and participation. The draft was reviewed and approved by the larger project working group and then distributed to the International Spinal Cord Society (ISCoS), American Spinal Injury Association (ASIA), and relevant expert groups for review. Feedback received was considered before the final data set was approved. Results: The International SCI Pediatric A&P Basic Data Set is comprised of 13 variables: administration date, mobility, dressing, feeding, toileting, communication, family outings, spending time with friends, being out with friends, participating in team or club activity, paid work, dating, and physical activity. It is intended for children between 6 and 17 years of age, who have been discharged from initial rehabilitation/hospitalization for a minimum of 3 months. Conclusion: The International SCI Pediatric A&P Basic Data Set was developed to standardize the recording of a minimal amount of information about activities and participation in children with SCI. Further work on reliability and cultural validation is needed. Sponsorship: This study was funded by the Rick Hansen Institute, Research Award #G2015-27 (Mulcahey, PI).

Indexed as

Activities of Daily LivingInternational CooperationAdolescentChildDatabases, FactualExerciseFemaleFocus GroupsHumansMaleSpinal Cord InjuriesHealth careNeurological disorders

Identifiers

PMID31700689
PMCPMC6823481

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.