Evidence map›Paper›PMID 31700685›Full record

ArticleSpinal cord series and cases2019

Development of the International Spinal Cord Injury/Dysfunction Education Basic Data Set.

Joan Carney, Rhona Fisher, Marika Augutis, Susan Charlifue, Fin Biering-Sørensen, Wiebke Höfers, Miriam Hwang, Peter Wayne New, Marcel Post, Cristina Sadowsky and 4 more

Abstract read
In one paragraph

Article in Spinal cord series and cases, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 6 papers.

0numbers the graph read from it
0cells of the map it votes in
6citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

6 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Article
  5. A Primary Care Provider's Guide to Pediatric Spinal Cord Injuries.Topics in spinal cord injury rehabilitation · 2020
    Review
  6. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

14 authors.

Joan CarneyRehabilitation Department, Kennedy Krieger Rehabilitation Institute, Baltimore, MD USA.
Rhona FisherFisher Association, Baltimore, MD USA.
Marika Augutis3Department of Neurobiology, Care Sciences and Society, Karolinska Institute, Stockholm, Sweden.
Susan Charlifue4Research Department, Craig Hospital, Englewood, CO USA.
Fin Biering-Sørensen5Department of Spinal Cord Injuries, Neuroscience Centre, Rigshospitalet, University of Copenhagen, Copenhagen, Denmark.
Wiebke Höfers6Physiotherapy Department, Sunnaas Hospital, Bjørnemyr, Norway.
Miriam Hwang7Research Department, Shriners Hospitals for Children, Chicago, IL USA.
Peter Wayne New8Epworth-Monash Rehabilitation Unit, Department of Epidemilogy and Preventitive Medicine, School of Public Health and Preventative Medicine, Monash University, Melbourne, Australia.ORCID 0000-0002-5669-3286
Marcel Post9Center of Excellence for Rehabilitation Medicine, Brain Center Rudolf Magnus, University Utrecht and De Hoogstraat Rehabilitation, Utrecht, Netherlands.ORCID 0000-0002-2205-9404
Cristina SadowskyRehabilitation Department, Kennedy Krieger Rehabilitation Institute, Baltimore, MD USA.ORCID 0000-0003-4028-7301
Lawrence Vogel7Research Department, Shriners Hospitals for Children, Chicago, IL USA.
Lilly Augustine10School of Education and Psychology, Jönköping University, Jönköping, Sweden.
Kathryn DentDepartment of Occupational Therapy, Center for Outcomes and Measurement, Jefferson College of Rehabilitation Sciences, Jefferson (Philadelphia University+Thomas Jefferson University), Philadelphia, PA USA.
M J MulcaheyDepartment of Occupational Therapy, Center for Outcomes and Measurement, Jefferson College of Rehabilitation Sciences, Jefferson (Philadelphia University+Thomas Jefferson University), Philadelphia, PA USA.ORCID 0000-0002-0837-714X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Study design: Consensus among international experts. Objectives: The objective of this project was to develop the International Spinal Cord Injury/Dysfunction (SCI/D) Education Basic Data Set. Setting: International expert working group. Methods: The published guidelines for developing the International SCI Basic Data Sets were used to develop the International SCI/D Education Basic Data Set. Existing measures and literature on education and disability were reviewed to develop a preliminary draft of the basic education data set through iterative modifications via biweekly conference calls and email communication. The draft was disseminated to the larger International Workgroup for Development of Pediatric SCI/D Basic Data Sets and then to the members of the International Spinal Cord Society (ISCoS), American Spinal Injury Association (ASIA), and relevant expert groups and interested individuals for comments. All feedback received was taken into consideration before the final data set was approved by ISCoS and ASIA. Results: The finalized version of the International SCI/D Education Basic Data Set Version 1.0 contains 16 items divided into three domains: school setting/therapeutic services, school participation/academic success, and barriers/attitudes. Most of the variables have been adapted from established measures. This data set is intended for children and youth up to and including high school, but not for emerging adults in higher education or postsecondary vocational training or trade schools. Conclusion: The International SCI/D Education Basic Data Set has been developed for collection of a minimal amount of highly relevant information on the education experience in children and youth with SCI/D. Further validation work is needed. Sponsorship: This project was funded by the Rick Hansen Institute, Research Award #G2015-27 (Mulcahey, PI).

Indexed as

International CooperationSocieties, MedicalData CollectionEducationHealth EducationHumansSchoolsSpinal Cord InjuriesStudentsHealth careNeurological disorders

Identifiers

PMID31700685
PMCPMC6821817

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.