ArticleResearch involvement and engagement2019
Engaging children and families in pediatric Health Research: a scoping review.
Article in Research involvement and engagement, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to 2 registered trials, which are not on this map. Cited by 53 papers, 4 of them syntheses that pooled it.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
AI-based Model for Rehabilitation Engagement and Motor Performance Evaluation in Pediatric Patients
AI-based Model for Rehabilitation Engagement and Motor Performance Evaluation in Pediatric Patients
Who cites it
53 citing papers in PubMed, 4 syntheses or guidelines pooled it, 93 citations in OpenAlex.
- Pooled it
- Involvement of children and young people in the conduct of health research: A rapid umbrella review.Health expectations : an international journal of public participation in health care and health policy · 2024Pooled it
- Youth engagement in mental health research: A systematic review.Health expectations : an international journal of public participation in health care and health policy · 2023Pooled it
- No evidence synthesis about me without me: Involving young people in the conduct and dissemination of a complex evidence synthesis.Health expectations : an international journal of public participation in health care and health policy · 2021Pooled it
- Which needs do children, adolescents, and young adults with ME/CFS and their parents express and feel? - Qualitative study in Germany.BMC public health · 2026Article
- Expertise of European Clinical Trial Units in Conducting and Managing Cross-Border Pediatric Clinical Trials for Rare Diseases.Therapeutic innovation & regulatory science · 2026Article
- The Many Faces of Engagement: A Scoping Review of Paediatric Patient and Family Engagement in Clinical Care, Education and Research.Health expectations : an international journal of public participation in health care and health policy · 2026Article
- Trends in patient and public involvement in health research 2000-2024.Research involvement and engagement · 2026Review
- Partnering With Caregivers and Clinicians to Determine Research Priorities in Pediatric Migrant Health.JAMA network open · 2026Article
- Codevelopment of a Digital Screening and Intervention Tool to Improve Lifestyle Habits in Children: Focus Group Study With Parents and Clinicians.JMIR pediatrics and parenting · 2026Article
- Data Sources and Analytic Approaches Used to Evaluate the Impact of Patient and Public Involvement in Child Health Research: Simple Random Survey of Individual Studies in Published Reviews.Health expectations : an international journal of public participation in health care and health policy · 2026Review
- Adolescent advisory groups in the ALIVE study: Feasibility and acceptability in global mental health prevention research.Global mental health (Cambridge, England) · 2026Article
- Participation of children and adolescents in healthcare, prevention and health research: A dot survey.PloS one · 2026Article
- Patient and Public Involvement in Paediatric Pragmatic Randomized Controlled Trials: A Mixed Methods Study.Children (Basel, Switzerland) · 2025Article
- Article
- Characterizing research partnerships in child health research: A scoping review.Journal of child health care : for professionals working with children in the hospital and community · 2025Article
- 'There has to be some chemistry there': an interpretive description exploring the experiences, motivations and dynamics of partnered child health research.Research involvement and engagement · 2025Article
- How are patient partners involved in health service research? A scoping review of reviews.Research involvement and engagement · 2025Review
- Families' Perceptions of Powered Mobility for Participation in Children With Spinal Muscular Atrophy Type 1: A Photovoice Study.Health expectations : an international journal of public participation in health care and health policy · 2025Article
- Developing Assessments for Key Stakeholders in Pediatric Congenital Heart Disease: Qualitative Pilot Study to Inform Designing of a Medical Education Toy.JMIR formative research · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors at 1 institution in 1 country.
Funding
No grant is acknowledged in the PubMed record.
Abstract
aimPatient engagement (PE) in pediatric health services research is challenging due to contextual factors such as busyness of parenting, work schedules, and diverse family structures. This scoping review seeks to comprehensively map current PE strategies with parents and families across existing published pediatric health research literature.
methodsWe followed Arksey and O'Malley (2005) and Levac et al., (2010) six-stage scoping review process. We conducted the search strategy in Medline, Embase, CINAHL, and Psychinfo databases. Data were extracted from included articles; evidence tables were developed and narrative synthesis was completed.
resultsOf 3925 retrieved records, seventeen articles were included in the review. Patient engagement primarily occurred through strategies such as advisory groups, meetings, focus groups and interviews. Strategies were used to engage patients at various levels, for different purposes (e.g., to inform, participate, consult, involve collaborate and/or lead). These strategies were also used at various stages of the research process. Navigating power differences, time and money were commonly reported challenges. Inconsistent terminology plagued (e.g., stakeholder engagement, consumer participation, patient and public involvement, participatory research) this body of literature and clarity is urgently needed.
conclusionsThis review offers insights into current PE strategies used in pediatric health services research and offers insight for researchers considering employing PE in the future.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.