Evidence map›Paper›PMID 31699175›Full record

ArticlePalliative & supportive care2020

An examination of Latino advanced cancer patients' and their informal caregivers' preferences for communication about advance care planning: A qualitative study.

Megan Johnson Shen, Cyndi Gonzalez, Benjamin Leach, Paul K Maciejewski, Elissa Kozlov, Holly G Prigerson

Erratum issuedOpen access · greenAbstract read
In one paragraph

Article in Palliative & supportive care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. An erratum has been issued. Cited by 16 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
16citing papers in PubMed, 1 pooled it
2.4field-weighted citation impact, top 11% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

16 citing papers in PubMed, 1 synthesis or guideline pooled it, 31 citations in OpenAlex.

  1. Pooled it
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  4. Establishing a Spanish-Focused Advance Care Planning Educational Session for Latina Breast Cancer Survivors.Journal of cancer education : the official journal of the American Association for Cancer Education · 2024
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  14. Fighting racism in research.Palliative & supportive care · 2021
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4 · The record

Corrections and comments

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 1 country.

Megan Johnson ShenDepartment of Medicine, Weill Cornell Medicine, New York, NY.ORCID 0000-0001-8006-8459
Cyndi GonzalezDepartment of Medicine, Weill Cornell Medicine, New York, NY.
Benjamin LeachDepartment of Medicine, City of Hope, Duarte, CA.
Paul K MaciejewskiCornell Center for Research on End-of-Life Care, New York, NY.
Elissa KozlovDepartment of Medicine, Weill Cornell Medicine, New York, NY.
Holly G PrigersonDepartment of Medicine, Weill Cornell Medicine, New York, NY.
Cornell University · USCity of Hope · US

Funding

Psychosocial Approaches to Better Understanding & End-Stage Cancer Care (PROTECT)R35CA197730 · NCI · WEILL MEDICAL COLL OF CORNELL UNIV · PI Holly Gwen Prigerson · 2015 to 2026
$11.2M
The Weill Cornell Medicine Research Training Program in Behavioral GeriatricsT32AG049666 · NIA · WEILL MEDICAL COLL OF CORNELL UNIV · PI SARA J CZAJA, Manney Carrington Reid · 2016 to 2026
$3.2M
Latino vs. Non-Latino Disparities in Advance Care Planning & End-of-Life CareR01MD007652 · NIMHD · WEILL MEDICAL COLL OF CORNELL UNIV · PI MACIEJEWSKI, PAUL K, PRIGERSON, HOLLY GWEN · 2014 to 2018
$1.9M
Culturally Competent Communication Intervention to Improve Latinos' Engagement in Advance Care PlanningK07CA207580 · NCI · WEILL MEDICAL COLL OF CORNELL UNIV · PI SHEN, MEGAN JOHNSON · 2017 to 2021
$915k
NCI NIH HHS K07 CA207580NCI NIH HHS R35 CA197730NIA NIH HHS T32 AG049666NIMHD NIH HHS R01 MD007652
6 · The paper itself

Abstract

objectivesLatino-advanced cancer patients engage in advance care planning (ACP) at lower rates than non-Latino patients. The goal of the present study was to understand patients' and caregivers' preferred methods of communicating about ACP.

methodsPatients and caregivers were interviewed about cultural, religious, and familial beliefs that influence engagement in ACP and preferences for ACP communication.

resultsFindings highlighted that Latino patients respect doctors' medical advice, prefer the involvement of family members in ACP discussions with doctors, hold optimistic religious beliefs (e.g., belief in miracles) that hinder ACP discussions, and prefer culturally competent approaches, such as using their native language, for learning how to discuss end-of-life (EoL) care preferences. SIGNIFICANCE OF

resultsKey cultural, religious, and familial beliefs and dynamics influence Latino engagement in ACP. Patients prefer a family-centered, physician informed approach to discussing ACP with consideration and incorporation of their religious medical beliefs about EoL care. Promising targets for improving the communication of and engagement in ACP include integrating cultural and religious beliefs in ACP discussions, providing information about ACP from the physician, involving family members in ACP discussions and decision-making, and giving instructions on how to engage in ACP discussions.

Indexed as

CommunicationProfessional-Patient RelationsAdvance Care PlanningAgedCaregiversConsumer BehaviorFemaleHispanic or LatinoHumansMaleMiddle AgedNeoplasmsPatient CareQualitative ResearchTerminal CareAdvance care planningCancerCommunicationEnd-of-life careHealth disparitiesLatino

Identifiers

PMID31699175
PMCPMC7205556
OpenAlexW2985478314

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.