Evidence map›Paper›PMID 31696787›Full record

ArticleJournal of palliative care2020

Design and Preliminary Testing of the Caregiver-Centered Communication Questionnaire (CCCQ).

George Demiris, Freda DeKeyser Ganz, Claire J Han, Kenneth Pike, Debra Parker Oliver, Karla Washington

Abstract read
In one paragraph

Article in Journal of palliative care, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 13 papers.

0numbers the graph read from it
0cells of the map it votes in
13citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

13 citing papers in PubMed.

  1. Article
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  11. Patient-caregiver communication concordance in cancer-refinement of the Cancer Communication Assessment Tool in an Australian sample.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022
    Article
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

George DemirisDepartment of Biobehavioral Health Sciences, School of Nursing, University of Pennsylvania, Philadelphia, PA, USA.
Freda DeKeyser GanzHenrietta Szold Hadassah-Hebrew, University School of Nursing, Hashmonaim, Israel.
Claire J HanDepartment of Biobehavioral Nursing and Health Informatics, School of Nursing, University of Washington, Washington, DC, USA.
Kenneth PikeDepartment of Biobehavioral Nursing and Health Informatics, School of Nursing, University of Washington, Washington, DC, USA.
Debra Parker OliverFamily and Community Medicine, School of Medicine, University of Missouri, Columbia, MO, USA.
Karla WashingtonFamily and Community Medicine, School of Medicine, University of Missouri, Columbia, MO, USA.

Funding

A Problem Solving Intervention for Hospice CaregiversR01NR012213 · NINR · UNIVERSITY OF WASHINGTON · PI DEMIRIS, GEORGE · 2011 to 2021
$4.2M
ACCESS_Access for Cancer Caregivers to Education and Support for Shared decisionmakingR01CA203999 · NCI · WASHINGTON UNIVERSITY · PI PARKER OLIVER, DEBRA · 2017 to 2021
$3.6M
NCI NIH HHS R01 CA203999NINR NIH HHS R01 NR012213
6 · The paper itself

Abstract

The study objective was to develop and test a new survey instrument that measures caregiver-centered communication. We developed a questionnaire inspired by the National Cancer Institute framework on patient-centered communication, focusing on family caregiver communication for this tool. The questionnaire includes 5 subscales: exchange of information, relationship with team, emotions, managing care, and decision-making. The initial questionnaire was reviewed by domain experts for face validity and edited further to include 30 items. We administered the modified questionnaire to 115 family caregivers of patients with serious illness in various settings. Cronbach α for the entire scale was 0.97 and ranged from 0.82 to 0.93 for the 5 subscales. Participants found that the survey addressed important concepts and that items were in most cases easy to understand. This instrument provides a structured way to assess caregiver-centered communication, addressing a pressing need for tools that measure the extent to which communication is responsive to the needs and preferences of family caregivers. Further testing and refinement are needed to improve the ease of use and examine the reliability and validity of this measure.

Indexed as

CommunicationDecision Making, SharedAdultCaregiversFemaleGuidelines as TopicHumansMaleMiddle AgedPsychometricsReproducibility of ResultsSurveys and QuestionnairesYoung AdultCaregivercommunicationquestionnaireshared decision makingsurvey

Identifiers

PMID31696787
PMCPMC7202953

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.