ArticleJournal of the American Geriatrics Society2020
Living in the Community With Dementia: Who Receives Paid Care?
Article in Journal of the American Geriatrics Society, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 49 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
49 citing papers in PubMed, 68 citations in OpenAlex.
- A Mobile Self-Assessment and Referral Platform for Family Caregivers of Individuals With Alzheimer Disease and Related Dementias: Protocol for a Pilot Randomized Controlled Trial.JMIR research protocols · 2026Trial
- Outcomes of home-based primary care for homebound older adults: A randomized clinical trial.Journal of the American Geriatrics Society · 2023Trial
- Caregiver outcomes related to sleep disturbances in persons living with cognitive impairment.Geriatric nursing (New York, N.Y.) · 2026Article
- Differences in patient access to and utilization of caregiving services: a scoping review.BMC health services research · 2026Article
- Community places visited and abandoned by people living with dementia in British Columbia, Canada: patterns and implications.Frontiers in public health · 2026Article
- Dementia Severity Associated With Unmet Caregiving Needs During Skilled Home Health Care.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026Article
- Quality of life and burden during the COVID-19 pandemic: a longitudinal study with family caregivers of persons living with Alzheimer's disease.Frontiers in psychology · 2026Article
- Reimagining U.S. social care policy: a commentary on Medicaid strategies to better support individuals with dementia.Frontiers in dementia · 2026Article
- Bedbound Status During the Last Year of Life Among Community-Dwelling Older Adults.JAMA network open · 2025Article
- The National Dementia Workforce Study: The Plan for Organization Sample Frames and Data Collection.Journal of the American Geriatrics Society · 2025Article
- The National Dementia Workforce Study: Development of Questionnaires for Home Care, Assisted Living, and Nursing Home Settings.Journal of the American Geriatrics Society · 2025Article
- Caring While Moving: Case Studies on Physical Activity and Dementia Caregiver Well-Being.Healthcare (Basel, Switzerland) · 2025Article
- Management and Care for People Living With Dementia and Their Caregivers: Findings From an Italian National Survey on Caregivers and Services Use.Psychogeriatrics : the official journal of the Japanese Psychogeriatric Society · 2025Article
- Formal caregivers' knowledge, attitudes, and challenges in end-of-life care for people with advanced dementia: a qualitative study in Chinese nursing home.BMC nursing · 2025Article
- Economic Burden of Alzheimer Disease and Related Dementias by Race and Ethnicity, 2020 to 2060.JAMA network open · 2025Article
- The dementia care workforce: Essential to care but large research gaps exist.Alzheimer's & dementia : the journal of the Alzheimer's Association · 2025Review
- When Do Paid Caregivers Support the Health of Older Adults? Geriatrician Perspectives.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2025Article
- Caregiving burdens of task time and task difficulty among paid and unpaid caregivers of persons living with dementia.Frontiers in public health · 2025Article
- Young Adult Caregivers for Older Family Members: Setting a New Research Agenda.Innovation in aging · 2025Review
- Paying for home care out-of-pocket is common and costly across the income spectrum among older adults.Health affairs scholar · 2025Article
Corrections and comments
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Authors and funding
7 authors at 4 institutions in 1 country.
Funding
Abstract
objectivesPaid caregivers (eg, home health aides and personal care attendants) provide hands-on care that helps individuals with dementia live in the community. This study (a) characterizes paid caregiving among community-dwelling individuals with dementia and (b) identifies factors associated with receipt of paid care.
designCross-sectional analysis.
settingThe 2015 National Health and Aging Trends Study (NHATS), a nationally representative study of Medicare recipients aged 65 years and older.
participantsCommunity-dwelling individuals with dementia (n = 899). MEASUREMENTS: Paid and family caregiving support was determined by participant or proxy report of help received with functional tasks. Multivariable logistic regression was used to examine factors associated with receipt of paid care. NHATS population sampling weights were used to produce national paid caregiving prevalence estimates.
resultsOnly 25.5% of community-dwelling individuals with dementia received paid care, and 10.8% received 20 hours or more of paid care per week. For those who received it, paid care accounted for approximately half of the 83 total caregiving hours (paid and family) that they received each week. Among the subgroup of individuals with advanced dementia (those with impairment in dressing, bathing, toileting, and managing medications and finances), nearly half (48.3%) received paid care. Multivariable analysis, adjusting for sociodemographic, family caregiving support, functional, and clinical characteristics, found that the odds of receiving paid care were higher among men (odds ratio [OR] = 1.91; 95% confidence interval [CI] = 1.24-2.95), the unmarried (OR = 2.20; 95% CI = 1.31-3.70), those with Medicaid (OR = 2.16; 95% CI = 1.27-3.66), and those requiring more help with activities of daily living (ADLs) (OR = 1.32; 95% CI = 1.18-1.48) and instrumental ADLs (OR = 1.29; 95% CI = 1.14-1.46).
conclusionsNew ways of making paid caregiving more accessible throughout the income spectrum are required to support family caregivers and respect the preferences of individuals with dementia to remain living in the community. J Am Geriatr Soc 68:186-191, 2019.
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