Evidence map›Paper›PMID 31695545›Full record

ArticleAdolescent health, medicine and therapeutics2019

Health care professional perceptions of online information and support for young people with cancer in the United Kingdom.

Sarah Lea, Ana Martins, Sue Morgan, Jamie Cargill, Rachel M Taylor, Lorna A Fern

Open access · goldAbstract read
In one paragraph

Article in Adolescent health, medicine and therapeutics, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
0.7field-weighted citation impact, top 27% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed, 5 citations in OpenAlex.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 2 institutions in 1 country.

Sarah LeaCancer Division, University College London Hospitals NHS Foundation Trust, London, UK.
Ana MartinsCancer Division, University College London Hospitals NHS Foundation Trust, London, UK.
Sue MorganTeenage Cancer Trust Unit, Leeds Teaching Hospitals NHS Trust, Leeds, UK.
Jamie CargillTYA Cancer Service South West, Bristol Haematology and Oncology Centre, Bristol, UK.
Rachel M TaylorCancer Division, University College London Hospitals NHS Foundation Trust, London, UK.
Lorna A FernCancer Division, University College London Hospitals NHS Foundation Trust, London, UK.
University College London Hospitals NHS Foundation Trust · GBLeeds Teaching Hospitals NHS Trust · GB

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

purposeThe internet is integral to young people, providing round-the-clock access to information and support. Young people with cancer report searching for online information and support. What they search for and why varies across their timeline and is mainly driven by negative emotion. We sought to understand how health care professionals (HCPs) perceived online information and support for young people with cancer. POPULATION AND

methodsSemi-structured interviews with eight HCPs across the UK informed the development of a survey, completed by 38 HCPs. Framework analysis was used to identify key themes and the survey was analyzed descriptively.

resultsSeven themes emerged as integral to HCP's perceptions of online information and support, these included: views about young people's use of online resources; how needs change along the cancer timeline; different platforms where HCPs refer young people to online; whether young people's online needs are currently met; recognition of the emotional relationship between young people and the internet; barriers and concerns when referring young people to online resources; and strategies used in practice.

conclusionProfessionals play an important role in signposting young people to online resources, where they are confident about the accuracy and delivery of information. The biggest perceived barrier to facilitating online access was the cost to the NHS, and most concerning factor for HCPs was keeping young people safe online. There is a need to develop online resources specific for young people on psychosocial topics beyond treatment to support young people and HCPs through this period.

Indexed as

adolescentcommunicationinformationinternetonlinesupportteenagerunmet needsyoung adult

Identifiers

PMID31695545
PMCPMC6718256
OpenAlexW2970231371

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.