ArticleBMC palliative care2019
What are essential elements of high-quality palliative care at home? An interview study among patients and relatives faced with advanced cancer.
Article in BMC palliative care, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 36 papers, 2 of them syntheses that pooled it.
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
36 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- Quality and Safety of Proximity Care Centered on the Person and Their Domiciliation: Systematic Literature Review.International journal of environmental research and public health · 2023Pooled it
- Advantages and Challenges of Using Telehealth for Home-Based Palliative Care: Systematic Mixed Studies Review.Journal of medical Internet research · 2023Pooled it
- Development of an interprofessional person-centred care concept for persons with care needs living in their own homes in Germany (interprof HOME): a mixed methods study.BMC primary care · 2025Trial
- Evaluating the Potential of Machine Learning and Wearable Devices in End-of-Life Care in Predicting 7-Day Death Events Among Patients With Terminal Cancer: Cohort Study.Journal of medical Internet research · 2023Trial
- State of development of regional hospice and palliative care networks in Germany and a descriptive comparison of the role of coordination: results of an online survey using a maturity model.BMC palliative care · 2026Article
- Nursing students' understanding of caring for older people receiving home care: a qualitative study.BMC geriatrics · 2026Article
- Implementing palliative reasoning in multiprofessional palliative care: A participatory action research in the Netherlands.PloS one · 2026Article
- Quality indicators of outpatient palliative care: A systematic review.Asia-Pacific journal of oncology nursing · 2025Review
- "Being ill defines your daily life": Social wellbeing of patients residing at home facing an incurable illness and their primary family caregivers.BMC palliative care · 2025Article
- Important Elements of Quality Home End-of-Life Care in China.JAMA network open · 2025Article
- Factors that support home deaths for patients receiving at-home palliative and end-of-life care: a sequential mixed-methods explanatory study.BMC palliative care · 2025Article
- Supporting relatives when general palliative care is provided at home- a focus group study based on nurses' experiences.BMC palliative care · 2025Article
- Person-centred care in oncological home services: a scoping review of patients' and caregivers' experience and needs.BMC health services research · 2025Article
- A Personalised Caring Approach at Home-Patients, Relatives and Nurses' Experiences of Specialised Palliative Care: An Integrative Literature Review.Nursing open · 2025Review
- Being Seen as a Unique Person is Essential in Palliative Care at Home and Nursing Homes: A Qualitative Study With Patients and Relatives.The American journal of hospice & palliative care · 2025Article
- "Don't leave us behind": a qualitative study exploring the feasibility of a palliative care training program for non-health caregivers in Honduras.Palliative care and social practice · 2025Article
- Using 'Situation-Background-Assessment-Recommendation' Method in Palliative Care to Enhance Handover Quality and Nursing Practice: A Mix Method Study.Journal of clinical nursing · 2025Article
- Accessibility and Quality of Palliative Care-Experience in Primary Health Care.Medicina (Kaunas, Lithuania) · 2024Article
- Regional hospice and palliative care networks worldwide: scoping review.BMJ supportive & palliative care · 2024Article
- Recovery environments in places of daily living: a scoping review and conceptual analysis.BMC public health · 2024Article
Corrections and comments
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Authors and funding
7 authors.
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No grant is acknowledged in the PubMed record.
Abstract
backgroundIn the Netherlands, general practitioners (GPs) and community nurses play a central role in the palliative care for home-dwelling patients with advanced cancer and their relatives. To optimize the palliative care provision at home, it is important to have insight in the elements that patients and relatives consider essential for high-quality palliative care, and whether these essentials are present in the actual care they receive.
methodsQualitative semi-structured interviews were conducted with 13 patients with advanced cancer and 14 relatives. The participants discussed their experiences with the care and support they received from the GP and community nurses, and their views on met and unmet needs. Interview data were analysed according to the principles of thematic analysis.
resultsPatients as well as relatives considered it important that their GP and community nursing staff are medically proficient, available, person-focused and proactive. Also, proper information transfer between care professionals and clear procedures when asking for certain resources or services were considered essential for good palliative care at home. Most interviewees indicated that these essential elements were generally present in the care they received. However, the requirements of 'proper information transfer between professionals' and 'clear and rapid procedures' were mentioned as more difficult to meet in actual practice. Patients and relatives also emphasized that an alert and assertive attitude on their own part was vital in ensuring they received the care they need. They expressed worries about other people who are less vigilant regarding the care they receive, or who have no family to support them in this.
conclusionsMedical proficiency, availability, a focus on the person, proper information transfer between professionals, clear procedures and proactivity on the part of GPs and community nursing staff are considered essential for good palliative care at home. Improvements are particularly warranted with regard to collaboration and information transfer between professionals, and current bureaucratic procedures. It is important for care professionals to ensure that the identified essential elements for high-quality palliative care at home are met, particularly for patients and relatives who are not so alert and assertive.
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