Evidence map›Paper›PMID 31694299›Full record

SynthesisInternational journal of environmental research and public health2019

Patient Perspectives to Inform a Health Literacy Educational Program: A Systematic Review and Thematic Synthesis of Qualitative Studies.

Margot Jager, Janine de Zeeuw, Janne Tullius, Roberta Papa, Cinzia Giammarchi, Amanda Whittal, Andrea F de Winter

Abstract readSystematic Review
In one paragraph

Synthesis in International journal of environmental research and public health, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 15 papers, 2 of them syntheses that pooled it.

0numbers the graph read from it
0cells of the map it votes in
15citing papers in PubMed, 2 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

15 citing papers in PubMed, 2 syntheses or guidelines pooled it.

  1. Pooled it
  2. The Effect of Health Literacy Interventions on Self-management in Chronic Diseases: A Systematic Review.Annals of behavioral medicine : a publication of the Society of Behavioral Medicine · 2025
    Pooled it
  3. Article
  4. Article
  5. Article
  6. How Do Healthcare Professionals Develop the Communication Process to Promote Patients' Health Literacy?International journal of environmental research and public health · 2024
    Article
  7. Article
  8. 'BMJ open · 2023
    Article
  9. Review
  10. Article
  11. Review
  12. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Margot JagerDepartment of Health Sciences, University Medical Center Groningen and University of Groningen, 9700 AD Groningen, The Netherlands.
Janine de ZeeuwDepartment of Health Sciences, University Medical Center Groningen and University of Groningen, 9700 AD Groningen, The Netherlands.
Janne TulliusDepartment of Health Sciences, University Medical Center Groningen and University of Groningen, 9700 AD Groningen, The Netherlands.ORCID 0000-0002-1366-774X
Roberta PapaRegional Health Agency Marche Region, 60125 Ancona, Italy.ORCID 0000-0003-3827-5918
Cinzia GiammarchiRegional Health Agency Marche Region, 60125 Ancona, Italy.
Amanda WhittalDepartment of Psychology & Methods, Jacobs University, 28759 Bremen, Germany.
Andrea F de WinterDepartment of Health Sciences, University Medical Center Groningen and University of Groningen, 9700 AD Groningen, The Netherlands.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Patient-centred care is tailored to the needs of patients and is necessary for better health outcomes, especially for individuals with limited health literacy (LHL). However, its implementation remains challenging. The key to effectively address patient-centred care is to include perspectives of patients with LHL within the curricula of (future) healthcare providers (HCP). This systematic review aimed to explore and synthesize evidence on the needs, experiences and preferences of patients with LHL and to inform an existing educational framework. We searched three databases: PsychInfo, Medline and Cinahl, and extracted 798 articles. One-hundred and three articles met the inclusion criteria. After data extraction and thematic synthesis, key themes were identified. Patients with LHL and chronic diseases encounter multiple problems in the care process, which are often related to a lack of person-centeredness. Patient perspectives were categorized into four key themes: (1) Support system; (2) Patient self-management; (3) Capacities of HCPs; (4) Barriers in healthcare systems. "Cultural sensitivity" and "eHealth" were identified as recurring themes. A set of learning outcomes for (future) HCPs was developed based on our findings. The perspectives of patients with LHL provided valuable input for a comprehensive and person-centred educational framework that can enhance the relevance and quality of education for (future) HCPs, and contribute to better person-centred care for patients with LHL.

Indexed as

Patient Education as TopicHealth LiteracyHealth PersonnelHumansPatientsQualitative Researcheducationhealth literacylearning outcomespatient-centerednesspatient perspectivesqualitative research

Identifiers

PMID31694299
PMCPMC6862529

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.