Evidence map›Paper›PMID 31693016›Full record

ArticleThe American behavioral scientist2019

Qualitative Data Sharing: Data Repositories and Academic Libraries as Key Partners in Addressing Challenges.

Sara Mannheimer, Amy Pienta, Dessislava Kirilova, Colin Elman, Amber Wutich

Abstract read
In one paragraph

Article in The American behavioral scientist, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 19 papers.

0numbers the graph read from it
0cells of the map it votes in
19citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

19 citing papers in PubMed.

  1. Review
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  7. Exchanging words: Engaging the challenges of sharing qualitative research data.Proceedings of the National Academy of Sciences of the United States of America · 2023
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  16. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Sara MannheimerMontana State University.
Amy PientaInter-university Consortium for Political and Social Research.
Dessislava KirilovaQualitative Data Repository.
Colin ElmanQualitative Data Repository.
Amber WutichArizona State University.

Funding

SHARING QUALITATIVE RESEARCH DATA: IDENTIFYING AND ADDRESSING ETHICAL AND PRACTICAL BARRIERSR01HG009351 · NHGRI · WASHINGTON UNIVERSITY · PI James M Dubois · 2017 to 2026
$4.0M
NHGRI NIH HHS R01 HG009351NIDA NIH HHS HHSN271201400033C
6 · The paper itself

Abstract

Data sharing is increasingly perceived to be beneficial to knowledge production, and is therefore increasingly required by federal funding agencies, private funders, and journals. As qualitative researchers are faced with new expectations to share their data, data repositories and academic libraries are working to address the specific challenges of qualitative research data. This paper describes how data repositories and academic libraries can partner with researchers to support three challenges associated with qualitative data sharing: (1) obtaining informed consent from participants for data sharing and scholarly reuse; (2) ensuring that qualitative data are legally and ethically shared; and (3) sharing data that cannot be deidentified. This paper also describes three continuing challenges of qualitative data sharing that data repositories and academic libraries cannot specifically address-research using qualitative big data, copyright concerns, and risk of decontextualization. While data repositories and academic libraries can't provide easy solutions to these three continuing challenges, they can partner with researchers and connect them with other relevant specialists to examine these challenges. Ultimately, this paper suggests that data repositories and academic libraries can help researchers address some of the challenges associated with ethical and lawful qualitative data sharing.

Identifiers

PMID31693016
PMCPMC6830543

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.