ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2020
Health-related quality of life of children and their parents 6 months after children's critical illness.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 14 papers, 1 of them a synthesis that pooled it.
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Who cites it
14 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Neurocognitive functioning and health-related quality of life of children after pediatric intensive care admission: a systematic review.Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation · 2022Pooled it
- Health-related quality of life of children and their parents 2 years after critical illness: pre-planned follow-up of the PEPaNIC international, randomized, controlled trial.Critical care (London, England) · 2020Trial
- Post-Intensive Care Syndrome in Pediatric Neurovascular Patients: A Qualitative Study of Parent Experiences.Cureus · 2025Article
- Follow-up needs after paediatric critical care: A survey.Paediatrics & child health · 2025Article
- [Self-reported quality of life of pediatric patients discharged from the Intensive Care Unit].Revista espanola de salud publica · 2025Observational
- Lung life HRQoL measure: psychometric properties and initial data in presumptive TB.IJTLD open · 2025Article
- Health-Related Quality of Life and Mental Health of Parents of Children with Pediatric Abdominal Tumors.Children (Basel, Switzerland) · 2024Article
- Commentary: Hospital quality of life for children: development of a new measurement tool for hospitalised children.Journal of research in nursing : JRN · 2024Article
- Predicting functional and quality-of-life outcomes following pediatric sepsis: performance of PRISM-III and PELOD-2.Pediatric research · 2023Article
- Functional Outcomes in Survivors of Pediatric Sepsis: A Scoping Review and Discussion of Implications for Low- and Middle-Income Countries.Frontiers in pediatrics · 2022Article
- The Challenges of Measuring and Valuing Quality of Life in Preschool Children: A Retrospective Review of NICE Appraisals.Children (Basel, Switzerland) · 2021Article
- Long-Term Outcomes and the Post-Intensive Care Syndrome in Critically Ill Children: A North American Perspective.Children (Basel, Switzerland) · 2021Review
- What's the Cost? Measuring the Economic Impact of Pediatric Sepsis.Frontiers in pediatrics · 2021Article
- Long-Term Outcome of PICU Patients Discharged With New, Functional Status Morbidity.Pediatric critical care medicine : a journal of the Society of Critical Care Medicine and the World Federation of Pediatric Intensive and Critical Care Societies · 2021Article
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7 authors.
Funding
Abstract
purposeThis study aimed to examine health-related quality of life (HRQoL) of children and their parents, 6 months after the child's admission to the Pediatric Intensive Care Unit (PICU). Associations between parents' reports regarding HRQoL of their child and of themselves were investigated, as well as associations between children's baseline variables and their parent-reported HRQoL outcomes.
methodsThis is a secondary analysis of cross-sectional data collected in a group of children who participated in the PEPaNIC trial. Six months after discharge from the PICU, parents of critically ill children completed the Infant-Toddler Quality of Life Questionnaire (ITQOL, for age 0-3 years) or the Child Health Questionnaire-Parent Form 50 (CHQ-PF50, for age 4-18 years), which are parallel questionnaires. Parents completed the Short Form Health Survey (SF-12) regarding their own HRQoL. Results were compared with normative data.
resultsAt 6 months' follow-up, 86 children of the 1343 (6%) had died which resulted in 1257 eligible children. Parents of 576 surviving children (46%) completed the questionnaires. Children of responding parents had less often an acute reason for admission and differed in diagnosis compared with children of non-responders. PICU children scored lower on most ITQOL (n = 390) scales and CHQ-PF50 (n = 186) scales compared with normative data. Parents reported (n = 570) higher scores on the physical (p < 0.001) and lower scores on the mental SF-12 scale (p < 0.001) compared with normative data. Parents̕ mental HRQoL correlated with HRQoL they reported for their child (Pearson Correlations range 0.25-0.57, p < 0.001-0.002). Shorter length of stay, lower risk of mortality, younger age, and cardiac diagnosis were associated with higher parent-reported HRQoL outcomes for the child.
conclusionsSix months after PICU discharge, critically ill children have lower HRQoL compared with normative data. The mental component of HRQoL is impaired in parents and is associated with lower overall parent-reported HRQoL of their child.
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