ArticleQuality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation2020
Quality of life in older adults receiving hemodialysis: a qualitative study.
Article in Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 34 papers, 3 of them syntheses that pooled it.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
34 citing papers in PubMed, 3 syntheses or guidelines pooled it, 63 citations in OpenAlex.
- Efficacy of eHealth Interventions for Hemodialysis Patients: Systematic Review and Meta-Analysis.Journal of medical Internet research · 2025Pooled it
- Real experiences and care needs of frail older patients: a systematic review of qualitative studies.Frontiers in public health · 2025Pooled it
- Dialysis or kidney transplantation in older adults? A systematic review summarizing functional, psychological, and quality of life-related outcomes after start of kidney replacement therapy.International urology and nephrology · 2022Pooled it
- Goals of Frail Older People Living With Chronic Kidney Disease: A Mixed Methods Study.Journal of the American Geriatrics Society · 2025Trial
- Functional Predictors of Frailty and Kidney Disease Burden in Patients with End-stage Renal Disease Receiving Dialysis.Journal of frailty, sarcopenia and falls · 2026Article
- Examining Quality-of-Life Priorities of Older Adults Receiving Hemodialysis: A Q-Methodology Study.Kidney medicine · 2026Article
- Drug Burden Index and Its Association With Functional Outcomes in Patients Receiving Hemodialysis.Kidney medicine · 2026Article
- Kidney transplantation and dialysis in older adults: goals, expectations, satisfaction, and regret - a mixed-methods prospective cohort study.BMC nephrology · 2025Article
- Quality of life experience in physically frail people on renal dialysis: A qualitative meta-synthesis on the difficulties and resources for better health care.International journal of nursing sciences · 2025Review
- The Chinese version of the PERMA profiler: a validity and reliability study.BMC psychology · 2025Article
- Establishing Research Priorities in Geriatric Nephrology: A Delphi Study of Clinicians and Researchers.American journal of kidney diseases : the official journal of the National Kidney Foundation · 2025Article
- Quality of life in older immigrant adults on hemodialysis.PloS one · 2025Article
- Observational
- Experiences of Dietary Management and Social Adaptation in Young End-Stage Renal Disease Maintenance Hemodialysis Patients: A Qualitative Study.Patient preference and adherence · 2025Article
- The impact of life events on health-related quality of life in rural older adults: the moderating role of social support.Frontiers in public health · 2025Article
- Perceptions of healthcare providers on benefits, risks and barriers regarding intradialytic exercise among haemodialysis patients.International journal of qualitative studies on health and well-being · 2024Article
- Quality of life and social reinsertion of patients on maintenance haemodialysis in four government funded hospitals in Cameroon.BMC nephrology · 2024Article
- Symptom Burden in Patients on Maintenance Hemodialysis: Prevalence and Severity 17 Years Apart.Journal of clinical medicine · 2024Article
- The impact of quality of life on the survival of elderly patients with end-stage renal disease: a prospective multicenter cohort study in Korea.Clinical kidney journal · 2024Article
- Patients' Perspectives on Health-Related Social Needs and Recommendations for Interventions: A Qualitative Study.American journal of kidney diseases : the official journal of the National Kidney Foundation · 2024Article
Corrections and comments
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Authors and funding
4 authors at 2 institutions in 1 country.
Funding
Abstract
purposePatient priorities for quality of life change with age. We conducted a qualitative study to identify quality of life themes of importance to older adults receiving dialysis and the extent to which these are represented in existing quality of life instruments.
methodsWe conducted semi-structured interviews with 12 adults aged ≥ 75 years receiving hemodialysis to elicit participant perspectives on what matters most to them in life. We used framework analysis methodology to process interview transcripts (coding, charting, and mapping), identify major themes, and compare these themes by participant frailty status. We examined for representation of our study's subthemes in the Kidney Disease Quality of Life (KDQOL-36) and the World Health Organization Quality of Life for Older Adults (WHOQOL-OLD) instruments.
resultsAmong the 12 participants, average age was 81 (4.2) years, 7 African-American, 6 women, and 6 met frailty criteria. We identified two major quality of life themes: (1) having physical well-being (subthemes: being able to do things independently, having symptom control, maintaining physical health, and being alive) and (2) having social support (subthemes: having practical social support, emotional social support, and socialization). Perspectives on the subthemes often varied by frailty status. For example, being alive meant surviving from day-to-day for frail participants, but included a desire for new life experiences for non-frail participants. The majority of the subthemes did not correspond with domains in the KDQOL-36 and WHOQOL-OLD instruments.
conclusionNovel instruments are likely needed to elicit the dominant themes of having physical well-being and having social support identified by older adults receiving dialysis.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.