ArticleBMJ open2019
Experiences and supportive care needs of UK patients with pancreatic cancer: a cross-sectional questionnaire survey.
Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 21 papers, 2 of them syntheses that pooled it.
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Who cites it
21 citing papers in PubMed, 2 syntheses or guidelines pooled it.
- A Systematic Review and Meta-Analysis on the Levels of Supportive Care Needs in Adults With Cancer.Psycho-oncology · 2026Pooled it
- Systematic review of caregiver burden, unmet needs and quality-of-life among informal caregivers of patients with pancreatic cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Pooled it
- Exploring facilitators and barriers to the implementation of prehabilitation for individuals with pancreatic cancer: a survey of healthcare professionals.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2026Article
- Defining and measuring unmet palliative care needs among people with life-limiting illness: A scoping review of international evidence.Palliative medicine · 2026Article
- Assessing Clinical Factors and Communication Barriers Impacting Postoperative Regret in Patients with Pancreatic Cancer.Annals of surgical oncology · 2026Article
- Examining health system stakeholder-reported barriers and solutions to foregut cancer care.American journal of surgery · 2026Article
- Facilitators to oncological care in foregut cancer: The patient perspective.Surgical oncology insight · 2025Article
- Supportive Care Needs and Related Interventions in Patients with Pancreatic Cancer and Their Informal Caregivers: A Scoping Review.Journal of gastrointestinal cancer · 2025Article
- Pancreatic Cancer Patients Supportive Care Needs: A Qualitative Analysis.Psycho-oncology · 2025Article
- Barriers and facilitators of healthcare professionals in integrating shared decision-making in pancreatic cancer treatment: A network approach.Cancer medicine · 2024Article
- Financial toxicity among cancer patients, survivors and their families in the United Kingdom: a scoping review.Journal of public health (Oxford, England) · 2023Article
- Assessing the Educational Value of Pancreatic Cancer Videos on YouTube®.Journal of cancer education : the official journal of the American Association for Cancer Education · 2023Article
- Pancreatic Cancer Surgery: What Matters to Patients?Journal of clinical medicine · 2023Review
- Article
- Development, Testing, and Implementation of the Belgian Patient Reported Experience Measure for Pancreatic Cancer Care (PREPARE) Project: Protocol for a Multi-Method Research Project.JMIR research protocols · 2022Article
- Article
- The patient's perspective: a qualitative study of individual experience with decision-making, treatment, and recovery for resectable pancreatic cancer.Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer · 2022Article
- A qualitative investigation of the supportive care experiences of people living with pancreatic and oesophagogastric cancer.BMC health services research · 2022Article
- Unmet supportive care needs and associated factors: Evidence from 4195 cancer survivors in Shanghai, China.Frontiers in oncology · 2022Article
- Article
Corrections and comments
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Authors and funding
9 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
objectivesPatients diagnosed with pancreatic cancer have the poorest survival prognosis of any cancer. This survey aimed to describe their experiences of care and supportive care needs to inform future service provision.
designCross-sectional questionnaire survey of patients with pancreatic cancer in the UK.
settingIndividuals at any stage along the care pathway were recruited via five National Health Service sites in the UK, and online, from January to June 2018.
participants274 individuals completed the questionnaire (78% (215) were completed online). Approximately half of participants were diagnosed within the last year (133/274). Of 212 providing gender details, 82 were male and 130 were female. Ninety per cent (192/213) described themselves as White British. PRIMARY OUTCOME MEASURES: Experiences of communication and information; involvement in treatment decisions; supportive care needs.
resultsCommunication with, and care received from, clinical staff were generally reported positively. However, 29% (75/260) of respondents did not receive enough information at diagnosis, and 10% (25/253) felt they were not involved in decisions about their treatment, but would have liked to be. Supportive care needs were greatest in psychological and physical/daily living domains. 49% (108/221) of respondents reported one or more moderate/high unmet needs within the last month, of which the most commonly reported were: dealing with uncertainty about the future; fears about the cancer spreading; not being able to do things they used to; concerns about those close to them; lack of energy; anxiety; feelings of sadness and feeling down/depressed. Experiences were poorer, and unmet supportive care needs greater, in patients with unresectable disease.
conclusionsPatients with pancreatic cancer have unmet information and support needs across the cancer trajectory. Psychological and physical support appears to be the biggest gap in care. Needs should be assessed and supportive care interventions implemented from the point of diagnosis, and monitored regularly to help patients live as good a quality of life as possible.
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