Evidence map›Paper›PMID 31682729›Full record

ArticleThe Gerontologist2020

Are People Ready for Personalized Brain Health? Perspectives of Research Participants in the Lifebrain Consortium.

Barbara Bodorkos Friedman, Sana Suri, Cristina Solé-Padullés, Sandra Düzel, Christian A Drevon, William F C Baaré, David Bartrés-Faz, Anders M Fjell, Heidi Johansen-Berg, Kathrine S Madsen and 6 more

Abstract read
In one paragraph

Article in The Gerontologist, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 10 papers.

0numbers the graph read from it
0cells of the map it votes in
10citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

10 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
  4. Review
  5. Article
  6. Article
  7. Stakeholder engagement in European brain research: Experiences of the Lifebrain consortium.Health expectations : an international journal of public participation in health care and health policy · 2023
    Article
  8. Article
  9. Article
  10. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

16 authors.

Barbara Bodorkos FriedmanCenter for Lifespan Changes in Brain and Cognition, Department of Psychology, University of Oslo, Norway.
Sana SuriDepartment of Psychiatry and Oxford Centre for Human Brain Activity, Wellcome Centre for Integrative Neuroimaging, University of Oxford, UK.
Cristina Solé-PadullésDepartment of Medicine, Facultat de Medicina i Ciències de la Salut, Universitat de Barcelona, Spain.
Sandra DüzelMax Planck Institute for Human Development, Berlin, Germany.
Christian A DrevonVitas AS, Oslo, Norway.
William F C BaaréDanish Research Centre for Magnetic Resonance, Centre for Functional and Diagnostic Imaging and Research, Copenhagen University Hospital Hvidovre,Denmark.
David Bartrés-FazDepartment of Medicine, Faculty of Medicine and Health Sciences and Neuroscience Institute, University of Barcelona, Institut d'Investigacions Biomèdiques August Pi i Sunyer (IDIBAPS), Spain.
Anders M FjellCenter for Lifespan Changes in Brain and Cognition, Department of Psychology, University of Oslo, Norway.
Heidi Johansen-BergWellcome Centre for Integrative Neuroimaging, Oxford, UK.
Kathrine S MadsenDepartment of Nutrition, Institute of Basic Medical Sciences, Faculty of Medicine, University of Oslo, Norway.
Lars NybergCentre for Functional Brain Imaging, Umeå Universitet, Sweden.
Brenda W J H PenninxVU University Medical Centre (VUmc), Amsterdam, the Netherlands.
Claire SextonDepartment of Psychiatry and Oxford Centre for Human Brain Activity, Wellcome Centre for Integrative Neuroimaging, University of Oxford, UK.
Kristine B WalhovdCenter for Lifespan Changes in Brain and Cognition, Department of Psychology, University of Oslo, Norway.
Enikő ZsoldosDepartment of Psychiatry and Oxford Centre for Human Brain Activity, Wellcome Centre for Integrative Neuroimaging, University of Oxford, UK.
Isabelle Budin-LjøsneCenter for Lifespan Changes in Brain and Cognition, Department of Psychology, University of Oslo, Norway.

Funding

Wellcome Trust 203139/Z/16/Z
6 · The paper itself

Abstract

BACKGROUND AND

objectivesA healthy brain is central to physical and mental well-being. In this multi-site, qualitative study, we investigated views and attitudes of adult participants in brain research studies on the brain and personalized brain health as well as interest in maintaining a healthy brain. DESIGN AND

methodsWe conducted individual interviews with 44 adult participants in brain research cohorts of the Lifebrain consortium in Spain, Norway, Germany, and the United Kingdom. The interviews were audio recorded, transcribed, and coded using a cross-country codebook. The interview data were analyzed using qualitative content analysis.

resultsMost participants did not focus on their own brain health and expressed uncertainty regarding how to maintain it. Those actively focusing on brain health often picked one specific strategy like diet or memory training. The participants were interested in taking brain health tests to learn about their individual risk of developing brain diseases, and were willing to take measures to maintain their brain health if personalized follow-up was provided and the measures had proven impact. The participants were interested in more information on brain health. No differences in responses were identified between age groups, sex, or countries. DISCUSSION AND IMPLICATIONS: Concise, practical, personalized, and evidence-based information about the brain may promote brain health. Based on our findings, we have launched an ongoing global brain health survey to acquire more extensive, quantitative, and representative data on public perception of personalized brain health.

Indexed as

BrainGermanyHumansNorwayQualitative ResearchSpainUnited KingdomCognitionLifebrainLifestyleMental healthQualitative research

Identifiers

PMID31682729
PMCPMC7427479

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.