Evidence map›Paper›PMID 31676659›Full record

ArticleBMJ open2019

Doctors' perspectives on adhering to advance care directives when making medical decisions for patients: an Australian interview study.

Nadia Moore, Karen M Detering, Tessa Low, Linda Nolte, Scott Fraser, Marcus Sellars

Open access · goldAbstract read
In one paragraph

Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 23 papers.

0numbers the graph read from it
0cells of the map it votes in
23citing papers in PubMed
6.2field-weighted citation impact, top 3% of its field
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

23 citing papers in PubMed, 53 citations in OpenAlex.

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  15. Advance care directive prevalence among older Australians and associations with person-level predictors and quality indicators.Health expectations : an international journal of public participation in health care and health policy · 2021
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors at 3 institutions in 1 country.

Nadia MooreFaculty of Medicine, Dentistry and Health Science, University of Melbourne, Melbourne, Victoria, Australia.ORCID 0000-0003-2875-056X
Karen M DeteringFaculty of Medicine, Dentistry and Health Science, University of Melbourne, Melbourne, Victoria, Australia.ORCID 0000-0002-1884-7272
Tessa LowFaculty of Medicine, Dentistry and Health Science, University of Melbourne, Melbourne, Victoria, Australia.
Linda NolteAdvance Care Planning Australia, Austin Health, Heidelberg, Victoria, Australia.
Scott FraserFaculty of Medicine, Dentistry and Health Science, University of Melbourne, Melbourne, Victoria, Australia.
Marcus SellarsAdvance Care Planning Australia, Austin Health, Heidelberg, Victoria, Australia marcus.sellars@austin.org.au.
The University of Melbourne · AUAustin Health · AUThe University of Sydney · AU

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveAdvance care planning (ACP) assists people to identify their goals, values and treatment preferences for future care. Ideally, preferences are documented in an advance care directive (ACD) and used by doctors to guide medical decision-making should the patient subsequently lose their decision-making capacity. However, studies demonstrate that ACDs are not always adhered to by doctors in clinical practice. We aim to describe the attitudes and perspectives of doctors regarding ACD adherence and the utility of ACDs in clinical practice.

designFace-to-face semistructured interviews were conducted using three case-based vignettes to explore doctors' decision-making and attitudes towards ACDs. Transcripts were analysed using a thematic analysis.

settingDoctors from a variety of medical specialties and with varying experience levels were recruited from a large tertiary hospital in Melbourne, Australia.

participantsA total of 21 doctors were interviewed, 48% female (10/21). Most (19/21) reported having experience using ACDs.

resultsFour themes were identified: aligning with patient preferences (avoiding unwanted care, prioritising autonomy and anticipating family opposition), advocating best interests (defining futile care, relying on clinical judgement, rejecting unreasonable decisions and disregarding legal consequences), establishing validity (doubting rigour of the decision-making process, questioning patients' ability to understand treatment decisions, distrusting outdated preferences and seeking confirmation) and translating written preferences into practice (contextualising patient preferences, applying subjective terminology and prioritising emergency medical treatment).

conclusionsACDs provide doctors with opportunities to align patient preferences with treatment and uphold patient autonomy. However, doctors experience decisional conflict when attempting to adhere to ACDs in practice, especially when they believe that adhering to the ACD is not in the patients' best interests, or if they doubt the validity of the ACD. Future ACP programmes should consider approaches to improve the validity and applicability of ACDs. In addition, there is a need for ethical and legal education to support doctors' knowledge and confidence in ACP and enacting ACDs.

Indexed as

Advance Directive AdherenceAttitude of Health PersonnelClinical Decision-MakingPhysiciansAdvance Care PlanningAdvance DirectivesAustraliaFemaleHumansMaleadvance care directivesadvance care planningautonomyend-of-lifeinterviewssemistructured interviews

Identifiers

PMID31676659
PMCPMC6830700
OpenAlexW2985353703

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.