Evidence map›Paper›PMID 31676657›Full record

ArticleBMJ open2019

Understanding data and information needs for palliative cancer care to inform digital health intervention development in Nigeria, Uganda and Zimbabwe: protocol for a multicountry qualitative study.

Kehinde Okunade, Kennedy Bashan Nkhoma, Omolola Salako, David Akeju, Bassey Ebenso, Eve Namisango, Olaitan Soyannwo, Elizabeth Namukwaya, Adlight Dandadzi, Elizabeth Nabirye and 7 more

Abstract read
In one paragraph

Article in BMJ open, 2019. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 12 papers.

0numbers the graph read from it
0cells of the map it votes in
12citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

12 citing papers in PubMed.

  1. Article
  2. Review
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  5. Review
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  10. Thinking globally about cancer research on World Cancer Day.The Indian journal of medical research · 2020
    Article
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  12. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors.

Kehinde OkunadeCollege of Medicine, University of Lagos, Lagos, Nigeria.
Kennedy Bashan NkhomaFlorence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute, King's College London, London, UK.
Omolola SalakoDepartment of Radiation Oncology, Lagos University Teaching Hospital, Lagos, Nigeria.
David AkejuDepartment of Sociology, University of Lagos, Lagos, Nigeria.
Bassey EbensoNuffield Centre for International Health and Development, Leeds Institute of Health Sciences, University of Leeds, Leeds, UK.ORCID 0000-0003-4147-0968
Eve NamisangoAfrican Palliative Care Association, Kampala, Uganda.
Olaitan SoyannwoCentre for Palliative Care, University College Hospital, Ibadan, Nigeria.
Elizabeth NamukwayaDepartment of Internal Medicine, Makerere University, Kampala, Uganda.
Adlight DandadziClinical Trials Research Centre, College of Health Sciences, University of Zimbabwe, Harare, Zimbabwe.
Elizabeth NabiryeDepartment of Internal Medicine, Makerere University, Kampala, Uganda.
Lovemore MupazaIsland Hospice and Healthcare, Harare, Zimbabwe.
Emmanuel LuyirikaAfrican Palliative Care Association, Kampala, Uganda.
Henry DdunguUganda Cancer Institute, Kampala, Uganda.
Z Mike ChirenjeClinical Trials Research Centre, College of Health Sciences, University of Zimbabwe, Harare, Zimbabwe.
Michael I BennettAcademic Unit of Palliative Care, Leeds Institute of Health Sciences, University of Leeds, Leeds, UK.
Richard HardingFlorence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute, King's College London, London, UK.ORCID 0000-0001-9653-8689
Matthew J AllsopAcademic Unit of Palliative Care, Leeds Institute of Health Sciences, University of Leeds, Leeds, UK m.j.allsop@leeds.ac.uk.

Funding

Medical Research Council MR/S014535/1
6 · The paper itself

Abstract

introductionPalliative care is a clinically and cost-effective component of cancer services in sub-Saharan Africa (SSA). Despite the significant need for palliative cancer care in SSA, coverage remains inadequate. The exploration of digital health approaches could support increases in the quality and reach of palliative cancer care services in SSA. However, there is currently a lack of any theoretical underpinning or data to understand stakeholder drivers for digital health components in this context. This project addresses this gap through engaging with key stakeholders to determine data and information needs that could be supported through digital health interventions. METHODS AND ANALYSIS: This is a multicountry, cross-sectional, qualitative study conducted in Nigeria, Uganda and Zimbabwe. In-depth interviews will be conducted in patients with advanced cancer (n=20), caregivers (n=15), health professionals (n=20) and policy-makers (n=10) in each of the three participating countries. Data from a total of 195 interviews will transcribed verbatim and translated into English before being imported into NVivo software for deductive framework analysis. The analysis will seek to understand the acceptability and define mechanisms of patient-level data capture and usage via digital technologies. ETHICS AND DISSEMINATION: Ethics approvals have been obtained from the Institutional Review Boards of University of Leeds (Ref: MREC 18-032), Research Council of Zimbabwe (Ref: 03507), Medical Research Council of Zimbabwe (Ref: MRCZ/A/2421), Uganda Cancer Institute (Ref: 19-2018), Uganda National Council of Science and Technology (Ref: HS325ES) and College of Medicine University of Lagos (Ref: HREC/15/04/2015). The project seeks to determine optimal mechanisms for the design and development of subsequent digital health interventions to support development, access to, and delivery of palliative cancer care in SSA. Dissemination of these findings will occur through newsletters and press releases, conference presentations, peer-reviewed journals and social media. TRIAL REGISTRATION NUMBER: ISRCTN15727711.

Indexed as

Administrative PersonnelCaregiversData CollectionDelivery of Health CareHealth PersonnelNeeds AssessmentPalliative CareCell PhoneHumansNeoplasmsNigeriaPatient Reported Outcome MeasuresQualitative ResearchTelemedicineUgandaZimbabweinformation technologyinternational health servicesoncologypalliative carepublic healthqualitative research

Identifiers

PMID31676657
PMCPMC6830840

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.