ArticleJournal of the American Medical Informatics Association : JAMIA2020
Patient preferences for visualization of longitudinal patient-reported outcomes data.
Article in Journal of the American Medical Informatics Association : JAMIA, 2020. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 26 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
26 citing papers in PubMed.
- Evaluating a web-based personalized decision report for total knee or hip replacement: Lessons learned from patients.Journal of evaluation in clinical practice · 2023Trial
- Efficacy, Use, and Usability of the VIP-HANA App for Symptom Self-management in PLWH with HANA Conditions.AIDS and behavior · 2021Trial
- Symptom Tracking for Patient-Reported Outcomes in Cancer: User-Centered Design of the AthenaCompanion Web Application.Journal of medical Internet research · 2026Article
- Strategic Use of Negative Emojis in Messaging-Based Interventions for Public Health Communication on Social Media: Mixed Methods Study.JMIR human factors · 2026Article
- Digital Platform to Provide Health Data Feedback for Neurorehabilitation Patients: User-Centered Development and Proof-of-Concept Usability Study.JMIR rehabilitation and assistive technologies · 2026Article
- Changes in pain, quality of life, sleep, and mental health after uncomplicated spinal neurosurgery in palestine: a prospective study of patient-reported outcomes.Scientific reports · 2025Article
- Cocreating the Visualization of Digital Mobility Outcomes: Delphi-Type Process With Patients.JMIR formative research · 2025Article
- Patterns of symptom deterioration can support multimorbidity management in COPD: Perspectives of patients and healthcare professionals.PloS one · 2025Article
- A Practical Guide to Participatory Design Sessions for the Development of Information Visualizations: Tutorial.Journal of participatory medicine · 2024Article
- Development and evaluation of visualizations of smoking data for integration into the Sense2Quit app for tobacco cessation.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Seeing things the same way: perspectives and lessons learned from research-design collaborations.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Community engagement in the development of health-related data visualizations: a scoping review.Journal of the American Medical Informatics Association : JAMIA · 2024Article
- Oncology Providers' and Professionals' Experiences With Suicide Risk Screening Among Patients With Head and Neck Cancer: A Qualitative Study.JCO oncology practice · 2023Article
- A RE-AIM Evaluation of a Visualization-Based Electronic Patient-Reported Outcome System.Applied clinical informatics · 2023Article
- Digital health technologies to support medication adherence in chronic kidney disease.Nephrology (Carlton, Vic.) · 2022Review
- Emoji Education: How Students Can Help Increase Health Awareness by Making Emojis.JMIR medical education · 2022Article
- Comprehension, utility, and preferences of prostate cancer survivors for visual timelines of patient-reported outcomes co-designed for limited graph literacy: meters and emojis over comics.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Meeting the information and communication needs of health disparate populations.Journal of the American Medical Informatics Association : JAMIA · 2022Article
- Article
- Implementing patient-reported outcomes in routine clinical care for diverse and underrepresented patients in the United States.Journal of patient-reported outcomes · 2022Review
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
3 authors.
Funding
Abstract
objectiveThe study sought to design symptom reports of longitudinal patient-reported outcomes data that are understandable and meaningful to end users. MATERIALS AND
methodsWe completed a 2-phase iterative design and evaluation process. In phase I, we developed symptom reports and refined them according to expert input. End users then completed a survey containing demographics, a measure of health literacy, and items to assess visualization preferences and comprehension of reports. We then collected participants' perspectives on reports through semistructured interviews and modified them accordingly. In phase II, refined reports were evaluated in a survey that included demographics, validated measures of health and graph literacy, and items to assess preferences and comprehension of reports. Surveys were administered using a think-aloud protocol.
resultsFifty-five English- and Spanish-speaking end users, 89.1% of whom had limited health literacy, participated. In phase I, experts recommended improvements and 20 end users evaluated reports. From the feedback received, we added emojis, changed date and font formats, and simplified the y-axis scale of reports. In phase II, 35 end users evaluated refined designs, of whom 94.3% preferred reports with emojis, the favorite being a bar graph combined with emojis, which also promoted comprehension. In both phases, participants literally interpreted reports and provided suggestions for future visualizations.
conclusionsA bar graph combined with emojis was participants' preferred format and the one that promoted comprehension. Target end users must be included in visualization design to identify literal interpretations of images and ensure final products are meaningful.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.